GApotsie Posted February 16, 2011 Report Share Posted February 16, 2011 All 3 of my doctors stress "high salt" diet and lots of fluids with Florinef. I've never been told how much I should be consuming daily. How much do you intake? Quote Link to comment Share on other sites More sharing options...
lieze Posted February 16, 2011 Report Share Posted February 16, 2011 I've always drank quite a bit I think I drink between 1000 ml and 1500 ml per day.I haven't been told to increase salt.The only salt I get is on salty snacks and I often lightly salt my food. Quote Link to comment Share on other sites More sharing options...
Lovebug Posted February 16, 2011 Report Share Posted February 16, 2011 In the beginning I titrated my water to my symptoms and that equates to 4L (or more) per day. YES....that's 4000mL or ~120 oz, however you want to look at it. My doc told me to supplement with Powerade ZERO (b/c it has no sugar) for every 3rd 20 oz I drink. However, I have bad GERD and this doesn't sit well with my stomach so I dilute it with water....go figure, lol! And I don't drink the Powerade daily. I also try to add salt to my food but have always been a "low salt" eater. Interestingly, I must be careful with the salt b/c when I have Dysautonomia symptoms and I'm orthostatic, my BP goes UP not down (along with high HR). But if the salt helps me hang on the the water, my BP will eventually go down. It's weird and backwards but I'm so thankful I don't have the fainting spells that so many here have.Hope this helps! Quote Link to comment Share on other sites More sharing options...
mwise Posted February 16, 2011 Report Share Posted February 16, 2011 Dr. Shields from the Cleveland Clinic said to drink at least 2 liters of fluid a day. I make a mixture of salt water; 1 teaspoon of salt to a pint of water. You can add a teaspoon of sugar to cut the salt taste and works just as well. I also drink power drinks (gatorade, vitamin water) along with fruit juices, 1-2% milk, yogurt smoothies, etc...I also supplement with salt tablets if I need to help keep my blood pressure up. I do eat snacks with salt along with salting foods that I eat. I am glad to hear Florinef is working for you. I wasn't able to tolerate it. I am on Mestinon 60mg 3xday & Midodrine 5mg 3xday. Good luck with your fluid & salt intake. Quote Link to comment Share on other sites More sharing options...
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