jodielynn Posted February 8, 2011 Report Share Posted February 8, 2011 Hi everyone, thank you for this forum. I am still relatively new on this forum,but I find it rather comforting to know I am not alone in this. I have automatic dysfunction (ncs) and pots. I have tried everything it seems as of all of you I am sure. I have been on epogen for three weeks but no results yet. I am aware it. Could take eight weeks too notice a difference. Its just frustrating some times when I keep passing out daily. Do any of you have any stories of your use with epogen? I am afraid if it doesn't work,that their isn't anything left to try. Epogen was on dr grubbs list of meds for me to try but it is the last one he has listed. Thank you everyone for listening,I well try to stay positive.Jodielynn Quote Link to comment Share on other sites More sharing options...
corina Posted February 9, 2011 Report Share Posted February 9, 2011 hi jodielynn!though i haven't tried the epo myself i know there are people here who have and had success with it. try and not give up hope. when are you seeing your doc for a follow up?sending good thoughts,corina : ) Quote Link to comment Share on other sites More sharing options...
jodielynn Posted February 9, 2011 Author Report Share Posted February 9, 2011 Thank you, I go see my local cardiologist next week. I well keep the faith,I have two little boys they keep me going.. Quote Link to comment Share on other sites More sharing options...
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