mynagirl Posted February 3, 2011 Report Share Posted February 3, 2011 So I am going back on Mestinon b/c the dys/POTS is so bad lately. I barely have energy to stand (and I get dizzy as soon as I do). I've done the research and it appears okay for breastfeeding.It's been so long since I've been on it, I kind of don't remember what to expect, other than big activation of my digestion, which I *don't* need, LOL. Any other Mestinoners who can tell me what to expect in terms of improving my autonomic issues?Many thanks!Marie Quote Link to comment Share on other sites More sharing options...
KristinL Posted February 4, 2011 Report Share Posted February 4, 2011 Hi Marie, I have been on Mestinon since 2006 but did go off of it for awhile in 2009. But while off I had a major relapse. So I started back on it by the end of 2009 and have been on it ever since. What I can remember is that my blood pressure was more stable, I felt less dizzy, and I don't recall to much gi upset. I know that is not much help because my memory is not what it use to be Good luck!Kristin Quote Link to comment Share on other sites More sharing options...
mynagirl Posted February 4, 2011 Author Report Share Posted February 4, 2011 What I can remember is that my blood pressure was more stable, I felt less dizzy, and I don't recall to much gi upset.Hey, I'll take that for sure! I could definitely use less dizzy right now... Quote Link to comment Share on other sites More sharing options...
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