Godsgal Posted January 18, 2011 Report Share Posted January 18, 2011 Hi....I'm a 29 year old mom with a 9 month old and a 3 year old. 4 weeks ago my whole life changed. I went from being active, exercising, taking care of my kids, to not being able to walk around much more than to the bathroom. I have been to the hospital 6 times in the past month due to fainting, bp drops, high heart rates, etc. I need advice, understanding, and similar stories so I don't feel alone and can get help.For years I would randomly get black tunnel vision with a quick change in position but it would go away in a few seconds and I would chalk it up to my low blood pressure. I would also feel faint at times and I would rest and take fluids and the feeling would dissipate. I'm petite and my bp usually runs in the 90's over 60's. I moved to Broward county, Florida a few months ago into a house that had toxic mold. We realized it after a couple months and it was tested/confirmed with toxic mold. 2 days after I moved from that house I went nearly unconscious while shopping with my boys. I had about 4 hours of dystonia in the hospital....I couldn't talk right, or control my arms, legs, or tongue. I had tons of testing done and was sent home after 5 days telling me I had neurocardiogenic syncope. 2 EEG's were normal. Scheduled for a video EEG.I have not felt the same since. When I got home, I realized that I couldn't do any form of physical activity. Nothing. If I did, my heart would pound and race and I would get shortness of breath. I thought that quite strange and scared me half to death. I got a cardiologist and insisted I wasn't nuts and that something was wrong with me. He ordered a 10 day heart monitor for me which showed my heart rate going up to the 140's and 150's out of nowhere. He had never heard of POTS until 3 days before and thought I may have it. He sent me from his office to be admitted to the hospital because I could barely walk when I was there and I was passing out in the office. An EP confirmed the POTS diagnosis after the second tilt table test. Since then I have had different days, different symptoms. At one point, I was unable to sit up at all. The midodrine has helped with sitting up. Now I'm on Celexa, Toprol, Midodrine, and Fiournef (wrong spelling). At this point, I can't walk or stand much at all. Walking to the bathroom is the extent of what I can do. I get shortness of breath, like a heaviness in my chest, if I walk around my house too much. It lasts for about 15 minutes after I have stopped the activity. I need a wheelchair to go anywhere if I even feel like going. I wake up suddenly out of sound sleep with my heart racing. I get burning skin episodes like hot flashes without the profuse sweating. My vision has changed....light coming in through the blinds looks strange, makes me feel disoriented. Looking at the pond in my backyard and the way the water moves makes me feel strange also. I get shaky if I do too much walking around or standing up. No blood sugar issues. I suspect I have MCAD after some research on here b/c I have had hives, sometimes daily for years and years. I wore compressions for 2 days straight and when I took them off I found a giant ridge/lump in my muscle. My PCP thinks it's a giant fatty tumor (lipoma). Tested negative for a blood clot. ANY HELP, ADVICE, SUGGESTIONS, SIMILAR EXPERIENCES, would be VERY APPRECIATED. THANK YOU Quote Link to comment Share on other sites More sharing options...
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