Lovebug Posted January 11, 2011 Report Share Posted January 11, 2011 I was reading information on this site and there is a write up on the types of issues that can cause POTS. Obviously this happens b/c we all have different symptoms and reactions to things. However, I'm just wondering how anyone may know the "type" of POTS they have. Was it the particular doctor or the Mayo clinic or something else that diagnosed you? Just wondering if I should pursue more specialty than my cardiologist (who has been a Godsend). I'm having problems with chest & abdominal pain & nausea (usually from the pain). While I do have orthostatic tachycardia, my BP goes UP (not down). I'm thinking I have splanchnic pooling due to sometimes SOB after eating and sometimes I think I can feel my pulse in my LUQ...weird. Example tonight: lying in my recliner I felt like my heart was beating in my LUQ abd (always where my pain is located too). I took my vitals which were 101/62-93. Knowing that being upright raises my BP, I sat up and after a few minutes my vitals were: 125/87-87. Anyway, any advise is appreciated. I just want my symptoms under control to live the best quality of life as possible. Quote Link to comment Share on other sites More sharing options...
abnel Posted January 11, 2011 Report Share Posted January 11, 2011 Hi there, from what I have read and understood from other posts on this forum it is useful to try and understand what type of POTS one has as this will give some clue as to what is the underlying cause of the disorder in that individual. Another reason is that certain medications are contra indicated in certain underlying conditions causing POTS, for example, I think I read that beta blockers are not recommended for people who have Mast Cell Activation Disorder. I am also in a similar position and wish I knew what was causing my POTS. I am finally being referred to a specialist who has some interest in POTS and related conditions like ME/CFS. I am hoping that he will be sympathetic and refer me for further tests if he doesn't know what kind of POTS I have and whether there is an underlying condition present. Quote Link to comment Share on other sites More sharing options...
abnel Posted January 11, 2011 Report Share Posted January 11, 2011 Re my last post.... I should have said "MAY" give some clue as to the underlying condition. Unfortunately many of us are still searching for answers even after extensive testing, medical exams, etc. Quote Link to comment Share on other sites More sharing options...
issie Posted January 11, 2011 Report Share Posted January 11, 2011 Ditto.....lotusflower is correct. Quote Link to comment Share on other sites More sharing options...
Lovebug Posted January 11, 2011 Author Report Share Posted January 11, 2011 Thanks you two. I must get a handle on this pain! It makes working very difficult although I've held in for over a year now. Thankfully my job has lots of time off or I don't know what I'd do. Quote Link to comment Share on other sites More sharing options...
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