goldicedance Posted April 29, 2010 Report Share Posted April 29, 2010 Do any of my friends here know about or actually have participated in the 3-week program? I saw the pain psychologist in Mayo Jax and he strongly recommended it. He said that the program has actually helped POTS people as well as fibromyalgia and of course other chronic disease sufferers. Quote Link to comment Share on other sites More sharing options...
Aquadiva Posted April 29, 2010 Report Share Posted April 29, 2010 I know of someone who went there for chronic pain. Said there were a LOT of POTS people there. That particular one was for kids, though, and was in Rochester. Quote Link to comment Share on other sites More sharing options...
goldicedance Posted May 1, 2010 Author Report Share Posted May 1, 2010 Thanks. It is in Rochester. Did they find it useful?Three weeks in Rochester.....Lois Quote Link to comment Share on other sites More sharing options...
mkoven Posted May 1, 2010 Report Share Posted May 1, 2010 I did a similar program at RIC in Chicago for pain, before my ans symptoms. It was helpful at the time. I don't know how they would have adapted it for POTS. It did teach me to manage my pain better and still try to lead a semi-normal life. Mayo actually recommends RIC's program as the most similar to theirs. Quote Link to comment Share on other sites More sharing options...
Aquadiva Posted May 6, 2010 Report Share Posted May 6, 2010 Thanks. It is in Rochester. Did they find it useful?Three weeks in Rochester.....LoisI think so, initially, but I am not so sure anymore. They pushed the routine with good sleep patterns, exercise, diet, etc. The child suffered from chronic pain that they couldn't explain (also has IBD and had colon removed), and I do recall it helped right away when they were still doing everything, but I do know that they still have pain. They thought it was a great program, but the parent was a bit disappointed as most were older teens and had other behavior (teen) type issues that didn't pertain to them and felt too much group time was centered around that. I almost got the picture that it was mostly a self-discipline/behavior modification type of program. Where they teach you how to be good to your body, more or less, and in turn you feel better and have less pain. That is only my interpretation, and I didn't participate, so I am going by what I was told by the parent that went with their child. I sure hope you find some help from it if you go--AND that your insurance pays for it. Quote Link to comment Share on other sites More sharing options...
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