Omg Thank You Dinet

[pinkbubbles1680]

So I hit a major wall with my pots in January of this year. I have been having awful palpitations, digestive issues, panic attacks, dizziness, and overall fatigue and feeling like crap.

I was taken into the hospital had tons of testing done to rule out disorders other than POTS. I was released and my neurologist told me to double my dose of florinef and drink more fluids. I took her advice and somewhat improved, but not enough. She referred me to mayo clinic. Mayo said I had all the testing they would do and said it would be a waste of time to go all the way there.

I felt like I was at a dead end. I went onto DINETS physicians lists and I found a POTS specialist like 30 minutes from me Dr. Abdallah at the childrens heart institute. My neurologist didnt really know what a cardiologist was going to do in regards to POTS and didn't seem to confident with me going there. I had basically had it with doctors, but since this wasn't totally out of my way I decided to go ahead and take the appointment.

I was so pleased with this doctor. I spent three hours there talking with his tech and getting tests run like ekg's and echos. When he came in to see me he did a physical exam which was extremely thorough and is almost positive that I have EDS and I can't even explain it the way he showed me how my POTS was effecting my body it was amazing. When I stood up all the discoloration was very apparent in my extremities. He thinks I have hypo-adrenic POTS which is great news because I've been having so much Panic and now it is all explained.

I'm having another tilt table test run next week along with some other autonomic testing. I cannot tell you how pleased I am. I finally feel like I'm in good hands with this guy said he can definitely help me and I cannot wait to see where it goes.

There is hope out there guys !

~alex

[sue1234]

I am glad you found a doctor that helped you and is thorough with you. That is way more than half the battle!

I wonder, what does he mean when he says "hypo-adrenic"? Does he mean low adrenals? Or low adrenaline(as in epinephrine)? Just curious. What does he do for that?

[DESPERATE DEB]

So I hit a major wall with my pots in January of this year. I have been having awful palpitations, digestive issues, panic attacks, dizziness, and overall fatigue and feeling like crap.

I was taken into the hospital had tons of testing done to rule out disorders other than POTS. I was released and my neurologist told me to double my dose of florinef and drink more fluids. I took her advice and somewhat improved, but not enough. She referred me to mayo clinic. Mayo said I had all the testing they would do and said it would be a waste of time to go all the way there.

I felt like I was at a dead end. I went onto DINETS physicians lists and I found a POTS specialist like 30 minutes from me Dr. Abdallah at the childrens heart institute. My neurologist didnt really know what a cardiologist was going to do in regards to POTS and didn't seem to confident with me going there. I had basically had it with doctors, but since this wasn't totally out of my way I decided to go ahead and take the appointment.

I was so pleased with this doctor. I spent three hours there talking with his tech and getting tests run like ekg's and echos. When he came in to see me he did a physical exam which was extremely thorough and is almost positive that I have EDS and I can't even explain it the way he showed me how my POTS was effecting my body it was amazing. When I stood up all the discoloration was very apparent in my extremities. He thinks I have hypo-adrenic POTS which is great news because I've been having so much Panic and now it is all explained.

I'm having another tilt table test run next week along with some other autonomic testing. I cannot tell you how pleased I am. I finally feel like I'm in good hands with this guy said he can definitely help me and I cannot wait to see where it goes.

There is hope out there guys !

~alex

So pleased to see you have found someone that knows what he is doing and hopefully you will start feeling a lot better soon x

DD