miranda Posted January 29, 2010 Report Share Posted January 29, 2010 My problems began years ago , I used to get fast heart beats and feel panicky and yuck.Then my gp put me on propranalol and my fast heart beat problem calmed down alot.Now I am seeing a neuro who discovered I had orthostatic hypotention ,she wants me to come off the propranalol but I am too afraid to try.from what I have read propranalol can stop the body producing adrenalin which causes orthostatic hypotention.Am I right ? or have I read it wrong. Quote Link to comment Share on other sites More sharing options...
arizona girl Posted January 29, 2010 Report Share Posted January 29, 2010 Your both right. She wants to see if the propranol is causing the hypotension, because it can lower BP as well as HR. What you really need is a TTT to see what happens with your HR/BP and/or if you have syncope (fainting) as well. If you can wean off the propran to do a Tilt Table, might not be a bad idea, especially if you haven't had one yet.Thing is with this condition you can have Pots, and/or hypotension, hypertension and syncope. Depending on the findings a lot of docs give propran. Because my BP goes up, the propran made that worse, so I am now on labetalol because I do both go up and down/syncope. Quote Link to comment Share on other sites More sharing options...
iheartcats Posted January 29, 2010 Report Share Posted January 29, 2010 Propranolol allows me to function. I do take it with Midodrine (as my BP can run low to normal and this mix helps me keep it in a normal range).You do have to go off meds for testing sometimes, which is a struggle. Maybe you can make sure if you are going off meds to get tested, you can get a bunch of testing at once? Quote Link to comment Share on other sites More sharing options...
miranda Posted January 29, 2010 Author Report Share Posted January 29, 2010 Thanks for the replys , its really nice talking to other sufferers.I am also on Amitryptyline and am cutting back on that too , I can feel the difference already.I just dont want to rock the boat. Another thing I wonder about is my heavy periods ,can this cause OH ? Quote Link to comment Share on other sites More sharing options...
iheartcats Posted January 29, 2010 Report Share Posted January 29, 2010 Thanks for the replys , its really nice talking to other sufferers.I am also on Amitryptyline and am cutting back on that too , I can feel the difference already.I just dont want to rock the boat. Another thing I wonder about is my heavy periods ,can this cause OH ?I know heavy periods make mine WORSE, so I try to have as few as possible (those 4 times a year BCP, like Seasonique, work well for me).Good luck! Quote Link to comment Share on other sites More sharing options...
miranda Posted January 30, 2010 Author Report Share Posted January 30, 2010 I was wondering if I should get them sorted out , I heard the coil can stop periods .Also I always get alot of gum bleeding , I have sensitive gums but could the twice a day brushing and bleeding not be helping ?I just want to sort this problem out as best I can , I have been doing the salt and fluid thing and now it says I have high blood pressure ,lol.This is my plan ....come off amitryptylinereduce propranalolstop periodsdrink moresalt meals - (can you get salt tablets in the uk ?)Maybe take flux ??? that raises blood pressure. Quote Link to comment Share on other sites More sharing options...
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