erickamcc0523 Posted January 13, 2010 Report Share Posted January 13, 2010 I know that EDS is genetic, and as far as I know, none of my blood relatives have been diagnosed, or are even that hyperflexable (I have a niece who has 2/9 of the Beighton score). However, I have suspected for the past year or so I might have EDS... Though my skin isn't excessivly flexable, I do have all 9 of the Beighton score, and since I've been diagnosed with POTS (I can't quite remember when I started having symptoms, but I can't quite remember when I didn't have symptoms), I have decided that perhaps I need to follow up on the EDS. Is it worth a shot being tested for it? What does a test for EDS entail? Quote Link to comment Share on other sites More sharing options...
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