lifesaver Posted October 30, 2009 Report Share Posted October 30, 2009 Hi everyone--I have had Dysautonomia for the last 3 years but it was tentatively diagnosed in August and confirmed by a tilt table test this week. Figuring out what type of Dysautonomia I have will be the doctor's next step.I am almost qualified for SSDI because of Fibromyalgia, Trigeminal Neuralgia, Sensory Ataxia, and Recurrent Depression. The Dysautonomia didn't even make it on that list. The cause of the Ataxia and maybe the Dys is thyroid disease with permanent nerve damage. I really want to work again, but teaching high school is no longer an option. What I need right now are medications to relieve the cognitive problems. Writing a simple post like this is difficult. I lose my train of thought and can't find the words I need at times. I scanned a lot of posts and see many of my symptoms and difficulties already under discussion. It will be very good to get to know everyone and support each other as we learn to live with this disease. My medical team is based at a St. Louis at a medical school, about a one hour drive from my home in Illinois. lifesaver Quote Link to comment Share on other sites More sharing options...
rymac Posted October 31, 2009 Report Share Posted October 31, 2009 Welcome to the forum. I hope you find some help and support here. Quote Link to comment Share on other sites More sharing options...
gwen Posted October 31, 2009 Report Share Posted October 31, 2009 Hi everyone--I have had Dysautonomia for the last 3 years but it was tentatively diagnosed in August and confirmed by a tilt table test this week. Figuring out what type of Dysautonomia I have will be the doctor's next step.I am almost qualified for SSDI because of Fibromyalgia, Trigeminal Neuralgia, Sensory Ataxia, and Recurrent Depression. The Dysautonomia didn't even make it on that list. The cause of the Ataxia and maybe the Dys is thyroid disease with permanent nerve damage. I really want to work again, but teaching high school is no longer an option. What I need right now are medications to relieve the cognitive problems. Writing a simple post like this is difficult. I lose my train of thought and can't find the words I need at times. I scanned a lot of posts and see many of my symptoms and difficulties already under discussion. It will be very good to get to know everyone and support each other as we learn to live with this disease. My medical team is based at a St. Louis at a medical school, about a one hour drive from my home in Illinois. lifesaver Quote Link to comment Share on other sites More sharing options...
gwen Posted October 31, 2009 Report Share Posted October 31, 2009 I'm in the st. louis area and work with several drs. at st. lukes in chesterfield. let me know if i can help Quote Link to comment Share on other sites More sharing options...
lifesaver Posted November 1, 2009 Author Report Share Posted November 1, 2009 Thanks so much Gracie---St. Lukes doesn't take my health ins but sometimes dr's are at several hospitals and might practice at one that my ins takes. And maybe more St. Louis hosp will be on the list of approved providers soon.Thanks so much! Quote Link to comment Share on other sites More sharing options...
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