jjb Posted October 28, 2009 Report Share Posted October 28, 2009 Hi all. Ava saw her neurologist this past Monday.She is happy with Ava's over health and development, but we are still trying to sort out what is what in terms of her paroxysmal symptoms of desatting, nausea & vomiting.We had seen aut neuro in Mass that DXd Ava with Aut Neuropathy and though Ava's monthly symptoms are and aut thing and her prolonged episodes of paralysis (which occur about twice a year) might be episodes of parasomnia.Ava's regular ped neuro believes the prolonged episodes are seizure and the monthly paroxysmal episodes may be migraine variants and/or possibly seizure.She mentioned possibly seeing another aut specialist, but we are seeing a mito neuro in a few weeks so I would rather wait before deciding on seeing another specialist.I would though like to get your input on good specialist to take children too that really understands dysautonmia and the odd health health quirks some of have.Does Dr Grubb see children?Thanks,jen Quote Link to comment Share on other sites More sharing options...
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