coloredblood Posted October 23, 2009 Report Share Posted October 23, 2009 So apparently almost 40% of my spleen died and all my Doc will say is that is was related to POTS. I want more info. I now have to keep my body from freaking out with a lot of a dead organ. It's supposed to regrow, however infection risk is high. Anyone have anything to help me understand?~Nancy Quote Link to comment Share on other sites More sharing options...
firewatcher Posted October 23, 2009 Report Share Posted October 23, 2009 Whoah! How did they figure that out?! Don't know anything about it, sorry! Quote Link to comment Share on other sites More sharing options...
Mrs. Burschman Posted October 24, 2009 Report Share Posted October 24, 2009 I've never even heard of that. Would it be because of lack of blood flow, I wonder?Gosh, I hope it grows back fast without problems!Amy Quote Link to comment Share on other sites More sharing options...
coloredblood Posted October 24, 2009 Author Report Share Posted October 24, 2009 It was from lack of blood to the organ. It was found with Blood work, X-ray, and CT scan. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted October 24, 2009 Report Share Posted October 24, 2009 Nancy,I don't have any new info, but the same thing happens with my kidney function. It gets really low, and then improves, then gets low...you get the picture. So far it hasn't stayed low enough long enough to do anything about it. We just keep an eye on it and keep checking my blood panels. I know I also have a lot of ischemia in my brain, too (dead spots where there's been too much lack of blood.) Thanks for bringing the topic up, because it is a real worry for many of us.Jana Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted October 26, 2009 Report Share Posted October 26, 2009 I'm so sorry you are dealing with this.This is the first time I have heard of such complications with POTS. Has anything been published on this topic?Of course, any dr I talk to about this condition seems to think it is nothing more than a nuisance. Quote Link to comment Share on other sites More sharing options...
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