dino551 Posted September 16, 2009 Report Share Posted September 16, 2009 Hi Everyone-Just wondering if anyone has seen Dr. Chelimsky at University Hospitals? He diagnosed me with estrogen related dysautonomia in Nov. 2008 and silent migraines. I have had a silent migraine going on since April of this year and it has really kept me homebound. I'm constantly having problems with lights, too much stimulation, noises, smells, dizziness, nausea to really go out by myself. He has recommended for me to be admitted to the hospital for a intravenous dhe treatment for 3 days. Has anyone experienced this treatment? I'm kinda of apprehensive, but desperate at this point. The only other preventative thing they have put me on is verapamill. It has helped, but not completely. Any suggestions, comments, or replies are appreciated. Thanks!Christine Quote Link to comment Share on other sites More sharing options...
Hilary Posted September 17, 2015 Report Share Posted September 17, 2015 I realize this is an old post but I too have been DX with estrogen related dysautonomia/silent migraines. I am in the treating stage. Did treatment work for you? what helped?. I have no tolerance for medication. Hikar Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted September 17, 2015 Report Share Posted September 17, 2015 Hi, Hillary,Sorry that you've got a lot going on right now. This can feel frustrating,I try to remember that when one door closes, another one opens.my pots doc was also booking patients out because there such a demand for them (like a great deal of pots docs) It might help if your refering doctor could get in touch with Dr. C to discuss the severity of your symptoms, your test results, etc. It may help or call the cancellation.http://www.mcw.edu/Neurology/Faculty/Thomas-Chelimsky-MD.htm His contact info is provided in the linkI believe that Dr. Chelimsky is now at Froedert University, anyone have additional info on this?I wish I had more personal information to share with you, i'm sorry. Wishing you the best of luck, we're here to offer support if we can. I hope another member may be able to share there exerpeiences with you. just wanted to welcome you to DINET!Sincerely,Sarah Quote Link to comment Share on other sites More sharing options...
Raisin Posted September 22, 2015 Report Share Posted September 22, 2015 I'm not sure but I believe another doc that I see at UH mentioned his name to me but then said he left UH? Anyway, he had nothing but good things to say about Dr. C. He said he is very compassionate and non judgmental. Wishing you the best! Quote Link to comment Share on other sites More sharing options...
p8d Posted September 29, 2015 Report Share Posted September 29, 2015 Dr Chelimsky is at Medical College of Wisconsin, works out of Frodert hospital in Milwaukee. I'm waiting for my appointment on January 25, scheduled it in July. Nice to hear he is nice. I've had a poor experience with the ANS specialist at Aurora in Milwaukee. Quote Link to comment Share on other sites More sharing options...
Hilary Posted October 3, 2015 Report Share Posted October 3, 2015 I should have been more specific..I have already seen Dr. Chelimsky.And yes, he is at Froedert in Milwaukee,WI. I am scheduled to see him again in December, along with a physical therapist and an endocrinologist. He is very nice,listens and spends a lot of time with you. Now if we could find something that works for me Quote Link to comment Share on other sites More sharing options...
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