Guest Julia59 Posted September 23, 2004 Report Share Posted September 23, 2004 Well I had my appointment today with Dr. Grubb.I told him about all my issues:Same old POTS symptoms---but getting worse lately, more near syncope spells, (more pain in the back of my head, neck, shoulders----basically everywhere, but mostly the upper body as a whole, gut motility getting worse andd the profound fatigue and weakness.I brought up the lead poisening issue. I showed him test results from March 2001 which showed 30.6 lead levels---when the norm is 8.0 or below. He meantioned that I should probably have another lead urine done. I did have another ran is 2001 and it was normal, but they did not run the same type of urine test. They should have done a third---and used the same type of test they did the first time---24 hour urine---with some kind of mix.I was supposed to start the cervical traction back in July after seeing Dr. Bolognese. I was so busy in the last couple of months---but not so bad I couldn't have started the traction. I guess I wanted things to calm a bit before I started. No excuse really. I started tonight----too soon to tell if it helps with my symptoms. I will do the traction for 30 days then call Dr. Bolognese with results.Dr. Grubb said my headaches are most likely caused from the lack of posterior CSF flow-which was also mentioned on my report from Dr. Bolognese. My report from Dr. Bolognese was faxed to my parent's house yesterday. Basically it said the same things I told all of you---the cervical/crainial instability with a deformity of the C1 irratating the brain stem with further pressure on top of the stenosis already there. Of course the cervical stenosis, EDS---which he calls joint hyper motility,and a couple of other herniated disks in the C7-T1 and L5-S1 area's of my spine. Dr. Grubb agreed that the EDS played a role in my joint instability---and spine instability. I just happen to have all of the instability cutting loose at once--it seems that way.He really can't do much to help me right now until I get this traction over with. It looks like he will set up my next appointment for 6 to 9 months. I think he is going to order another lead level. He was so busy today---so I really don't know until I call the office tomorrow to get my appointment time. The receptionist was gone by the time my appointment was over.He just doesn't know how to treat my symptoms until I get my traction done to see if it helps. Then we will know what symptoms are from POTS and what are from all the other mess with my neck and brain stem area. Maybe we'll know, because POTS symptoms can come from problems like that.I felt like such an idiot today, I was slurring, talking like a drunk----and I just was not focused. I sounded like a person with their ADHD out of control---only in a slurred fashion. I have so much going on---it's all running together.And this constant humming/vibrating sound in the back of my head is getting worse---and driving me nuts.Also, Dr. Bolognese said the chemical fumes from my ex-employer----most likely played a role in my initial crash-----(on set of POTS).Dr. Grubb is not sure if my symptoms are from POTS---or the problems I have with my neck and cranial area.A lot to think about...... Julie :0) Quote Link to comment Share on other sites More sharing options...
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