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Neuropathy Question


ajw4790

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Hi,

I have an appmt coming up to see a specialist (requires an overnight trip) so won't see them very often. Anyways, I am trying to collect my thoughts and questions.

I have asked some before, but does anyone else have patchy (non-glove and stocking) neuropathy? As in hairloss on legs/arms not in a distal to proximal loss pattern, but have some on ankle and on front of calf and none on back of calf and knee and much of thigh. It does not follow dermatome patterns either. So, far no dr has figured it out...

Which reminds me... I did see a Mystery Diagnosis where the young teenager was diagnosed with neurocardiogenic syncope etc. and had a lot of similar symptoms... slept a LOT etc. and did have the patchy hairloss and finally they figured out it was a problem with her pituitary. So, another thing to check into....

Also, on that one a girl with a headche that would not go away- due to a build up of pressure in the spinal canal.

Also, saw another Mystery diagnosis recently that seemed semi-familiar was one on angioedema, she had a lot of severe gastro symptoms. Also, the other lady had an inner ear thing that made it seem like she was always on a boat- things rocked around her.

They have had one on Chiari/EDS, anyone see that? Was it any good? Also, was one on Prinzmetal's Angina.

Anyways, anyone else have the patchy hairloss/neuropathy???? :)

Thanks!!! :)

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