persephone Posted May 23, 2008 Report Share Posted May 23, 2008 I've been taking this stuff for 2 years- it was the miracle cure for my POTS as it brought my bp right back up to normalBUTI have just discovered it affects the brain, cognition and neural processing.I've now been told to cut the dose if I can. I had no idea about any of this so thought others might also want to know about it...it actually explains a lot abotu what's happened to mehttp://www.nature.com/npp/journal/v33/n3/abs/1301439a.html Quote Link to comment Share on other sites More sharing options...
dsdmom Posted May 23, 2008 Report Share Posted May 23, 2008 I'm confused - the link you posted seems like it is a good thing...so why are they telling you to cut your dose? Quote Link to comment Share on other sites More sharing options...
persephone Posted May 23, 2008 Author Report Share Posted May 23, 2008 Those findings were in renal patients.For the rest of us, the effects could contribute to mood disorders and instability- it could make the mood more volatile and liable to fluctuate. Quote Link to comment Share on other sites More sharing options...
goldicedance Posted May 25, 2008 Report Share Posted May 25, 2008 I'm confused, too. That study seemed to be conducted on healthy volunteers. It seemed to say that epogen was acting in a way comparable to ssri's (anti-depressants).My oncologist was very concerned when I went on a trial of epogen for POTS. I had used it during chemotherapy treatment. Persephone, could you explain more about this study? How are you doing? We haven't heard much from you. Are you progressing in your doctoral studies?Lois Quote Link to comment Share on other sites More sharing options...
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