katcanny Posted January 13, 2017 Report Share Posted January 13, 2017 Hi to all! I seem to be getting new symptoms today when I am upright I am very dizzy but my heart rate is not going up very high but my blood pressure is rising? I'm confused does this need to be checked out? I'm on florinef not sure if that has anything to do with it? Does anyone else have higher blood pressure when standing? Mine was dropping! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 13, 2017 Report Share Posted January 13, 2017 Can you call your doctor's office with that question? Many of us experience variable blood pressure on standing. Mine can sometimes be high and other times low. Florinef can also affect blood pressure. Quote Link to comment Share on other sites More sharing options...
corina Posted January 13, 2017 Report Share Posted January 13, 2017 In fact, your bp needs to rise upon standing though not too much of course! If you have any concerns you best call your doctor's office like Katherine suggests! Quote Link to comment Share on other sites More sharing options...
katcanny Posted January 13, 2017 Author Report Share Posted January 13, 2017 Thank you for the replies ? I'm off to see my gp on Monday so I will talk to him about it then, whenever I seem to feel off and having a symptomatic day my blood pressure goes up when I'm walking around and I feel very dizzy all day, I have my first specialist appointment in a months time so I am very much looking forward to getting some sort of an answer as to what type of POTS I have. My gp is great and tries really hard but I need to see a specialist as I'm only on florinef at the moment as my bp was dropping when standing! Maybe the florinef is doing its job and I just feel dizzy it's so confusing and at the moment I'm really upset by this whole horrible illness Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted January 14, 2017 Report Share Posted January 14, 2017 My daughter's bp was getting high, so they are backing her off of her Florinef. Maybe the Florinef had done it's job for my daughter...she does eat a lot of salt, anyway. So we are trying to move it down slowly. I always find that "sneaking" off a medicine is much better than backing down in a hurry. Your body isn't as aware of it then. I would always ask your doctor. Quote Link to comment Share on other sites More sharing options...
katcanny Posted January 15, 2017 Author Report Share Posted January 15, 2017 We already tried to cut down the florinef from 1 to a half of 1 but then I ended up in hospital for 3 days getting discharged on 2 per day! I was feeling great on just one tablet but then tried to wean down, I guess I had to try! I wish your daughter all the luck in this world Quote Link to comment Share on other sites More sharing options...
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