garycooper

Like the others have said, on behalf of POTSys in relationships everywhere, thanks for caring enough to have found this site and posted! Obviously I can't speak for everyone, but I, for one, am incredibly moody. Thankfully, though not for them, my family take the brunt of it, and I can be "happy" or "pleasant" with other people! ) OK I'm really not that bad. Anyway- Energy is definitely a huge issue for us. I'm able to go to school, but keeping a regular job or any extracurricular activities is really difficult. My relationship is long-distance at the moment, so I guess that when it comes to energy levels on a daily basis, my BF doesn't have to see me sick in bed or lying about wishing the world would end already.

It probably goes without saying, but while we are not our POTS, it is definitely a part of who we are, whether we've learnt to deal with that or not so much, or to whatever degree, so that's got to put extra strain on a relationship.

Also, what she says and how she feels may not necessarily be the same thing... FX if you ask "How are you?" and she says, "Fine," out of habit. I know I'm often good at expecting some people to read my mind. Also often symptoms fluctuate often throughout the day as well as from day to day.

You said that she acts as if you're unimportant, but I guess I need more info there. It could be that she doesn't want to burden you, or if you mean she's ignoring you, maybe she's completely fatigued but doesn't want that issue to be a focal point, so avoiding you might not mean that she doesn't want to be with you or show you how she feels, but maybe she's embarrassed at having no energy or at having POTS be a main topic of conversation.

My BF has expressed concern, such as having nightmares that I get very sick and he doesn't know how to take care of me, and I've talked to him about it, and he still worries, but I can't really know what it's like to be on the other side of the fence at this point, so we all just do our best.

Anyway, I hope at least topic you've posted will bring up some good points to discuss with her, and I wish you two all the luck!

Like the others have said, on behalf of POTSys in relationships everywhere, thanks for caring enough to have found this site and posted! Obviously I can't speak for everyone, but I, for one, am incredibly moody. Thankfully, though not for them, my family take the brunt of it, and I can be "happy" or "pleasant" with other people! ) OK I'm really not that bad. Anyway- Energy is definitely a huge issue for us. I'm able to go to school, but keeping a regular job or any extracurricular activities is really difficult. My relationship is long-distance at the moment, so I guess that when it comes to energy levels on a daily basis, my BF doesn't have to see me sick in bed or lying about wishing the world would end already.

It probably goes without saying, but while we are not our POTS, it is definitely a part of who we are, whether we've learnt to deal with that or not so much, or to whatever degree, so that's got to put extra strain on a relationship.

Also, what she says and how she feels may not necessarily be the same thing... FX if you ask "How are you?" and she says, "Fine," out of habit. I know I'm often good at expecting some people to read my mind. Also often symptoms fluctuate often throughout the day as well as from day to day.

You said that she acts as if you're unimportant, but I guess I need more info there. It could be that she doesn't want to burden you, or if you mean she's ignoring you, maybe she's completely fatigued but doesn't want that issue to be a focal point, so avoiding you might not mean that she doesn't want to be with you or show you how she feels, but maybe she's embarrassed at having no energy or at having POTS be a main topic of conversation.

My BF has expressed concern, such as having nightmares that I get very sick and he doesn't know how to take care of me, and I've talked to him about it, and he still worries, but I can't really know what it's like to be on the other side of the fence at this point, so we all just do our best.

Anyway, I hope at least topic you've posted will bring up some good points to discuss with her, and I wish you two all the luck!

thank you for taking the time to reply. your comment that your family takes the brunt of your bad moods and your friends got the best really hit home. Why is that, because she seems to be pleasant to everyone else but the one she lives with, me. i am sure i have y faults but somedays i don't feel it is me.

thank you to all who replied. we are going through some tough times and i need all the encouragement i can get so i can give it to her in return. it seems like we hardly ever laugh and have a good time together right now, so i am hoping your replies and suggestions will be the encouragement i feel i need. God bless you all.

hi. this is all new to me as i am in a relationship with someone who has POTS. how can i be most supportive without feeling overwhelmed. she says she loves me and there are days she seems to want to be with me but others where she acts as if i am very unimportant. are mood swings a symptom of POTS and how can i best deal w/them. she has told me that her symptoms are not severe, she is still working but has little energy left for a relationship. thanks for any and all replies.