spapanik

Hi dizzy dame-

I was shocked when I heard your question, I get almost the same thing i think. Sometimes at night my feet and hands get really hot like they are on fire, and they feel really swolen. its weird cause its only my hands and feet, nothing else. I have told my doctor about this and she doesn't know what it is. I cannot sleep when this happens and I don't know what makes it go away. It usually only happens at night. Also if I put my feet in a hot tub, (like if i was getting a pedicure) My feet get really swollen.

does this sound like you or is it different

stacie

Dear Belinda:

I also read the article tonight and we were going to call the Texas hospital to find out. How did you get it set up? I have auto immune issues and this could be of help to me.

Who would you suggest I contact and do you have any phone numbers.

Thanks,

Stacie

Lindajoy

From what I understand POTS patients have trouble with stomach aches and initially get diagnosed with Irritable bowel syndrome. The autonomic nervous system controls that also. What I have found that works wonders is a Calcium-Magnesium complex 1000mg-500mg. by Country Life. ( Any brand will do but this brand helps me It's from the health food store) Take one at every meal with Vit. C-complex 1000 mg. by Nature's Life. It has really helped my stomach aches and I even had them so bad that I had a colonoscopy and an endoscopy. Use a heating pad at night. Maybe right now you have the flu or something else but when its stomach pains try the above.

Stacie

Hi Stacey

I had verigo as my main symptom of pots and vasovagal syncope and it was awful so i can completely sympathise. I found Prochlorperazine worked really well as you could take it 3 times daily or as needed. After just a few weeks it almost completely disapeared and now I only suffer when my pots/vvs is really bad. I too had a whole host of atology (sp) testing to check the causes of the vertigo. Nothing came of it and it was put down to the pots. Be careful if you have the caloric testing (flushing water through the ears). Mine was inconclusive but I have had really painful swolen ears since December where they damaged my ear canal doing the test. If you have it done leave it a week then get your ears checked. They didnt tel me to get checked at the time and my infection wasnt found for 3 months until it got bad. Hope it doesnt come to that. I know vertigo is awful but dont worry, it can just pass I'll keep my fingers crossed for you!

Take care

Luv Katie

Hi Katie-

Thank you for responding to me. When you had the vertigo, did you get nauseaded? Is Prochlorperazine for nausea? Yeah I could only get through one ear of the caloric testing. I had such horrible vertigo when they did the ear I couldn't go through with the other one. that was like 3 years ago. They said my ears were normal though. Thats horrible you got an infection.

Thank you for your help

Stacie

Hi, I am new here. My name is Stacie and I was just recently diagnosed with POTS. For three years I have had continuous vertigo. I don't get nauseated i just feel like Im going to loose consciousness. No one has been able to tell me what is going on and I have had every known test in the book. Everythings been normal. Now they are telling me that I have dysautanomia or POTS and I am just wondering if this is really what I have. From what I have researched, most of the people with POTS don't have vertigo, and if they do it is not their main symptom. I have it 24/7. Just in different severity. I usually do pretty good throughout the summer(although Im never normal and have the vertigo still) but in the winter the vertigo always flares up. This winter I have been in bed for four months. When I lay down, the room spins, but when I stand up, it's so much worse that I have to lay back down. I guess a good reason why they diagnosed me with POTS is when I stand up, my heart rate goes from 120-150. Do any of you have vertigo as your main symptom?

Along with the vertigo, I have experienced weird gravity sensations. It feels like I'm going against gravity when I stand up - it feels like gravity is pushing me down. I also get the opposite sometimes where it feels like I'm free-falling. I just wondered if anyone else feels these same things.

Thanks!

Stacie