simon greene

hi,

I get these attacks at night normally 15 mins after ive dropped off to sleep i wake up with pins and needles in my limbs and my heart is like a lead potato....i cant breath and i feel very scared then my heart does the 1812 overture...then i shake for 15 mins then it calms down... cant seem to get an answer from the doc or catch it on a ekg

rgds simon

Hi folks..

I am wondering how many of you get adrenaline surges after (or during) anight mare or nightterror or flashbacks of a traumatic event or events in your life?

I am asking b/c I have a teribly time with nightmares and flashbacks at times (like this evening).. that really put me thru a loop.. I had bad nightmare tonight as I took a nap.. and it casued a surge.. and fear reaction fight ot flight thing.. where I woke up with my heartracing a mile a minute.. my hands and feet where freezing cold.. but yet my facew as flsuhed and I felt feverish in my face.. and I was shaking.. and having anxiety(more fear actually then anxiety) issues.. and I could feel the adrenaline surging thru my body at high speed..

and it takes me a bit to get grounded. and even after i am "grounded" and full aware of my surrounding and know that I am safe.. I still surge.. and the fast heart beating is unreal!

SO I am wondering how do you all deal with this kind of thing?? I work with a therapist allready.. and do have a good handle on things.. but the nightmares/night terrors I do not.. and I have have learned by trial and error to never mantion anymore that I have Post traumatic stress disoder.(dx at 15) due to pretty severe- very life threatening trauma spanding over a period of roughly 15-16 yrs... (which again I deal with Much much better now..) .. I never say in my list of DX's thru the docs office that I have PTSD.. b/c before I was dx they kept saying that my PTSD was causing anxiety attacks and that that was why I felt like I did.. even when I wasnt having anxiety attacks....dr, Grubb assured me of that..

I realize that this is kind of a in between area for dysautonomia.. and I dont usually post about such personal issues.. But I'm really in need of suggestions from those of you eho know what I am talking about..

pointers that will help you ride out the adrenaline surge that is potsy.. but b/c of a HUGE fear reaction...if you dont feel comfortable posting feel free to send me a PM..

gosh I hope that you guys dont think I'm a nut ball now!

dizz

Hi everybody,

Today i went and had some heart tests in the local hospital,i live in phuket Thailand,they have a good private hospital but it costs BIG dosh to get treated... anyway i had a echocardiogram ...all clear no mitral valve problem then a strest test.... no probs a few pvc's but nothing abnormal.... then the tilt test but after the first set of tilts which made my stomach feel very knotted i backed out of the drugs being injected to make my symptoms appear....why... because i was scared ,i hate my heart symptons so much i didnt want to feel so ill ......so i chickened out,the Doc said we need to do it to find out whats going on but i said no.....the outcome is i have now got new pills ....concor 5mg and zolam .25 mg ...anyone have any info on these tablets.....yes i know i should have carried on.....so is there anyone who can guide me through what happens when they inject the drugs on the tilt test as the nurses english is not so good ...and no chance of any sympathy ...just get on with it man attitude........and pay the bill!

rgds wimp

Hi Simon, welcome to the board. I also agree with what ppl have said above...I would look into having a Tilt Table Test, Event Monitor, and Sleep Study. Hope you find the cause of all those symptoms!

Jacquie

Thanks for all your replies...I had never heard of POTS until i came on this website,I will investigate this with the DRS here.As for 24/48 tapes i have had these but with sods law nothing ever showed except occasional ectopic beats.. pvc.....not sure if they have event moniters here but i will ask as the for the tilt test I read about this a long time ago in connection with pace makers..but all the tests I have had they never showed that I was in need of one.....but having read your replies I think when I have these attacks my blood pressure may drop causing me to awaken and then this will lead into a palpations and the heavy heart feeling.I have head an echogram which found nothing wrong with my mitral valve butI I believe 100% something is wrong

as I said before I can handle the other symptoms of churning stomach,headaches,pins and needles,nausia ,shaking,sweating hands,lump in the throat the list goes on but these attack frighten me....thankyou for your replies.Its a bit lonely over here with knowone to dIscuss my problems....THIS WEBSITE IS A BLESSING

brgds simon

Hi my name is Simon, I am English but I live and work in Thailand.Recently I discovered the Mitral Valve Prolapse Syndrome Dysautonia survival guide book which has made very interesting reading. For 20 years I have suffered multiple symptoms to be told by Doctors I just have bad nerves ????.although I have had many tests carried out on my heart for occasional arrhythmias they have found nothing to be of major concern although they did offer an ablation if my pvc?s became unmanagable.Since reading this book I have recognized many symptoms with toooo.. many to list but the reason for my post is for any help from forum readers regarding my worst problem?. which is?.. When I go to sleep I am awoken by a lead heart and churning gripping middle ?. I sit up and I cannot get my breath I feel as if I am going to collapse my heart is definitely not beating properly and this is followed by violent shaking for 15 mins?..by the time I reach casualty the EKG just shows an occasional ectopic beats??..these symptoms are very worrying and almost always occur 20 mins into sleep although I have had a couple of episodes whilst swimming. It makes it worst living here as the language problem can be difficult, they seem to be always searching for cardiac disease and talking about pain which I don?t have .. They don?t understand our illness which I suppose is understandable in Thailand???my request is if anyone suffers similar problems to me?. then I would love to hear from you

because I can manage my other symptoms but this one almost paralyses me and seems to be happening more frequently.

Many thanks Simon