CelesteVai

Congratulations! (And the baby is BEAUTIFUL!!)

I would be willing to be that it is related to dysautonomia. I have been on multiple websites (searching for answers to my own symptoms) and Insomnia seems to be a recurring symptom on all the lists. I'd ask my doctor, perhaps they can tell you?

Thanks everybody - at least I know it's normal for things to get randomly worse and better. If it persists I will definatley go see a doctor. Thanks

I'm so sorry you have been feeling bad.Are you on any meds for mvp and pots? It is is not unusual for symptoms to come and go mysteriously. What has dr told you do when this happens? Try to take it easy and really drink those fluids. hope you start on the mend soon. welcome to the forum:-)

No meds. When I was first diagnosed with MVP they gave me a beta-blocker - BAD IDEA! Yes, it diminished the symptoms - but one of the side effects was depression, and out of all the nicer side effects like "drowiness" and "slight tingling sensation" I got the worst one...DEPRESSION! It was terrible, and I began to feel better after being taken off of the beta-blocker. A couple of months ago I was on Paxil, but got taken off of that because of excessive weight gain. (Side effects SUCK don't they??) ANyhow, now I am on no medications at all.

You think perhaps this is why I'm having such a hard time with my symptoms?

Hi and welcome.

I have MVP also. It is common for symptoms to wax and wane, change, lessen or become more intense. Definately at the least call your Dr. since these are new symptoms and are lasting. Once it sticks around longer than usual it is easy for the anxiety to take hold and increase the intensity. Dysautonomia can affect so many different parts even those you may not think.

Try to relax, do some type of relaxation. It could very well be a dysautonomia symptom with hyperventilation. If you read up on hyperventilation, tingling of the extremities is a common symptom.

Hope you feel better soon.

You're right, the first day I had this worsened symptom I think I definatley hyperventilated myself. As far as anxiety goes, the only reason I think it isn't, is because I'll be sitting down, resting, calm, with nothing on my mind, and suddenly I can't breathe. UGH!

Welcome. The mantra here is if it is a new symtpom check it out with your doctor to be safe. On the issue of the shallow breathing followed by tingling- it sounds like hyperventilation. Quick, short breaths can do this and cause the tingling you describe. And yes, unfortunately, sxs can come out of the blue and be brutal especially, if you have any any physical stress (even a virus) or emotional stress, sometimes. But, get it checked out especially since you are having chest pain. Are you followed by a cardiologist?

Carmen

Yeah, the virus thing could very well be it. My nose is a little stuffy, so my mom seems to think I have a slight chest cold - and according to one website I visited, the symptoms can worsen if you have a cold.

I've been diagnosed with Mitral Valve Prolapse, and have had symptoms of Dysautonomia for about 2 years. It's been pretty steady - I drink some caffeine and feel a little funny in the chest and can't breathe...but this normally goes away within an hour and I feel fine.

The other day however, I was sitting completley still, and suddenly I couldn't breathe! My chest was very tight and my breathing very shallow. Then, all of my limbs started tingling. I was scared, so I guess that's why I started trembling also. I related this outburst to sugar, since I had had a large glass of tea.

The problem is, this has now been going on solid for days. Very rarely am I breathing normally. My Chest almost constantly hurts now, and my shallow breathing has gotten worse.

I have purposley stayed away from sugar and caffeine for this reason, thinking that perhaps I've gotten more sensitive to it and this is the cause. Unfortunatley, even though I am taking in NO caffeine or sugar, I still can't breathe!!

Is it normal for the symptoms to randomly worsen for no apparent reason? This was all so sudden, so it has me quite freaked out :|