Sunshineoo77

My husband has Neurocardiogenic Syncope (NCS) and as part of that he was losing control of his bowel & bladder - his body seemed to just flush out anything it had. Most of the time he was completely fine and then WHAM. His cardiologist referred him to a urologist who ruled out other causes and diagnosed him with Neurogenic Bladder. He told us that while he didn't think he would be able to stop the episodes, he did think he could buy him some time (hopefully 15-20 minutes) and he thought that it might help with the bowel as well. He prescribed Detrol LA and IT HAS WORKED WONDERS! Of all of the symptoms he has had, this was the poised to be the straw that broke the camel's back. He has been on it since June and as promised, while he still may have an episode he has had time to deal with it. His only side effect has been severely dry mouth but recently he was started on Mestinon and the dry mouth seems to have eased as well.

If you do a search in this forum on "incontinence" you will see my previous posts (mainly because I can never remember how to spell diarrhea). If you read into the details of Detrol you will find that it is a smooth muscle anti-spasmotic and I believe both the bladder and bowel are smooth muscle.

This has been a wonder drug for him and may be worth consulting with your doctor.

Thank you very much for your info....that is actually a drug they haven't tried. I will definitely look into it! Thanks again

Hello There..... I' very new to this POTS thing..... I just got dx with it this past month. I have had some of the symptoms for awhile, but the harder to deal with ones ....like severe diarrhea, very low bp, dizziness, anxiety, fatique, vomitting...etc....those have become more prodominate the past 2-3 years and it has taken them....(doctors all over the southeast US) to finally figure a dx....and now a lot fo the symptoms that I had kind of ignored before, now all make since. For instance,I also have diabetes type 1 and have an allergic reaction to the insulin... severe swelling all over from face to toe...so I would simply write those symptoms off to that instead..... like the purple legs and hand and feet...and swelling for instance.....now it all makes sense....

Anyway, my biggest concern I guess is the diarrhea .... and financial..... does anybody have any suggestions for what to do for a liviing..... and/or what has worked for you about the severe diarrhea.

Mine is really bad and had been life changing. I was an extremely active fit chic....but now I have to wear diapers, have accidents....etc.....lost my job...was a very sucessful legal assistant...worked and protected problem kids..... but high stress also caused me to have to quit..... anyway....they have had me on everything from Euthormyacin to lotronex to sandostatin...... nothng, so far, seems to work.... I have been tested for everything from cancer to celiac to chrohns .....any suggestions.... this really is hard...... I have been reading some of your posts, though,...and it has helped....I have been dealing with this alone for 2-3 years now....slowly losing every aspect of my life..... it has been nice reading your posts....

Does anyone have any suggestions about the diarrhea ...... and what do you guys do for a living? thanks for any help...sorry sooooo long..... not feeling well ....and not being very articulate....thanks for understanding...Sunshine....