happy63

Hi Janine,

I had the flu a week ago. It 's the first time I've got it since my POTS. You know what I called it, POTS and DEATH.

I've tried antibiotcs,sirops hot tea but nothing would work except a magic traditional syrop.

Its very easy to prepare: make the juce of a red onion and add to it honey till it become suit like syrop and take a spoon in the morning and one in the evening . Believe me it works for the flu and caughing with wonders.

I hope you feel better soon.

Amouna

Hi MightyMouse,

Thanks ever so much for your promise to try to help me purchacing Florinef.

Amouna

Hi,

Last week I saw my doc and she once again prescribed Florinef .My symptoms are going worse even if I take a betabloker, Magnesium, Medivein, Gardenal and I increase salt and water intake.

My doc gave me a tablet of Florinef but I can't get this med from anywhere. I 've tied to purchase it via internet but my attempt was in vain . The payment accepted is Mastercard or Visa . As I do not have a Mastercard or a Visa I requested the company if I can pay via Western Union but they appologised that this form of payment is not accepted.

Oh I do not want to get once again anxious about getting Flornef . Can anybody offord any help? Iwould be very grateful

Amouna

My lightheadedness is a somewhat peculiar.I feell as if I am in a dream everything is turning aroud me. I see sparcling spots wherever I turned my eyes.I have to lie down and close my eyes for a while and sometimes the case lasts so long. If someone speaks to me I hear and understand what he/she says but I really cannot answer.I have the feeling that it is but a dream.

Amouna

Hi

I 've caught cold and and my symtoms go worse. I have terrible head ache and I feel dizzy lying sitting let olone standing. I take antibiotics and do my inhalations for asthma and take other medecines but I still feel very bad. I really do not know is it due to my POTS or is it due to sarcoidosis.

I know that my sarcoidosis is going worse but my POTS also worsen simultanously?

Any suggeston will be a great help.

Amouna

Hi

Comression hose brings much relief.Wearing mine I feel more confortable and I do not feel dizzy.

I buy mine at the pharmacy at the price of 60$. But they are also available at medical suply stores and there they are less expensive and you have a wide range to choose.

My cardiologist prescribed toe open hose and they realy worked for me.She insisted that I should buy toe opens hose N? 2 full abdomen.

If you like to buy compression hose choose toe open style according to your feet size.

I hope that you try cmp hose and feel comfortablewearing them.

Amouna

Hi

Thanks for all the interesting iformation Melissa, Nina and Michelle.

Good job! you have clarified everything . I appreciate it a lot.

Amouna

Hi,

Welcome to the forum.

Hope you find lots of useful information.

I thank you all for your greetings and I hope that you will all be cured and lead a better life

Hi everybody!

I am very happy to join this this group. At last I can share what I am undergoing with people, who in one way or another will understand me and give me advice. Except from my doctor and very few POTS patients I happened to encounter no one understands me when taking about POTS and its symptoms. I am suffering alone without even having someone to confort me or at least understand me when talking about not being able to stand up for a long time, terrible headaches, dizziness....YOU knou the rest.

Oh, I am happy to meet you all.

Amouna

I replied to your post on NDRF too, but I thought I'd add something else here. If you cannot obtain florinef, you might see if you can get an herb called liccorice root, or even black liccorice candy. Liccorice contains an ingredient which can elevate blood pressure; certainly you should ask your doctor before taking anything new, but if you absolutely can't get florinef, which was prescribed, you might ask if there are other options. Also, you might want to look at the main section of the DINET site that reviews treatment options, prescription and nonprescription.

http://www.dinet.org/what_helps.htm

Nina

Thank you very much Nina, you are doing your best to help and I am very grateful to you. As for Florinef I have given up trying to get it, but I will try to look for it once again in . Curently I am rainsing salt and taking the others medecines .

Amouna

Amouna,

Welcome to the board...I am so grateful that you have found our little spot on the internet...we are becoming a truly WORLD WIDE community. It is quite beautiful.

I am sorry that you are struggling so...I do not have any good answers, but wanted to welcome you.

Emily

Thanks ever so mutch Emily. I am very happy to to meet all meet all the members of this forum.

By the way, I am very optimistique despite everything.

Amouna

Hi everybody! Im new here.I have been diagnosed with POTS since June 2001.I think that the symptoms have always been the same since 1989. I have been suffering from tachycardia, dizziness,terrible headaches and I fainted from time to time...But fortunately my cardiologist prescribed for me a Betabloker and Xanax and some vitamines which helped me improve a great deal. I have taken those medecines for about 10 year. Taking my medecines and following my doctor's instructions I was more or less OK.It was only in the year 2001 when I felt that my healt has made a change in my life, my dizziness has been uncontolable and my BP has been very low . I did my Tilt Table Test and the diagnosis has been POTS. I have been prescribed Fludrocortisone, Gardenal, Magnesuium, Betabloker and I have been told to drink lot of watter and to wear compression sockings during the day.I had been under those drugs for about three years but there was no positive change concerning my symptoms,exept that my BP raised to 160/90.

Oh I feel sick to remember that periode of my life. I had spent plenty of time looking for people who would travel abroad and buy Fludrocortisone for me for the simple reason that it is not available in my home coutry.I stopped taking those medecines once again for about 18 months .And it is only in November 2004 that did my Tilt Table Test and have been re-diagnsed with POTS. Nows I am under Gardenal,Magnesium,Venamitol and I wear compression sockings.Fludrocortisone is prescribed fo me but who will import it for me? May God healp me and grant me health.I whish that you will all of you enjoy reading my story even if it is some what redendant.