Tiner's Roscoe
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Posts posted by Tiner's Roscoe
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His office canceled two of our appointments in the last year. The last one they never called back to reschedule. I just gave up. It is too hard to plan to travel only to have postponed plans last minute. The last one was cancelled two hours before we left to travel 450 miles to his office. We were lucky to be home.
He is wonderful though ... if you can get an appointment.
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My daughter has been experiencing intermittent rectal bleeding (in her stool and on the toilet paper) for the past 2 years with her POTS. She has had a colonscopy and an endoscopy and all was good, with the exception of one stretched pocket in between the large and small intestine that usually means there is a blockage, but they could not find any blockage. In addition, she has had a Meckel Scan and all was clear there as well. Also they checked her gallbladder and female organs, again all clear.
She experiences high volumes of GI pain all the time. Some days are more painful than others. We can put no pattern to her discomfort.
When she was at the New York Medical College, they tested her blood pooling and indicted that she pools most of her blood in her stomach, as opposed to her legs.
In a desperate need to make sense of this all I am correlating the blood pooling to the pain and rectal bleeding.
Does anyone have any insight I may be able to share with my doctor on this matter?
POTS and Disability
in Dysautonomia Discussion
Posted
At what age do you file for Social Security support? I have a daughter approaching 18 w/ POTS. Her father and I, as well as her doctor, know she won't be able to hold a full time college load to maintain insurance long term under our plan and it was recommended I have her declared as disabled, but I'm not sure how to go about that.
Anyone have any insight or direction for me? We just need to make sure we maintain insurance coverage.