My name is Hannah, but I like to use Handtalk as my online name. Handtalk stems from my knowledge and use of American Sign Language. (My hands 'talk'.)
I recognize many of your names from www.NDRF.org, where I originally started, but my parents have banned from NDRF. Thus, I have come here.
I just got back from meeting with Dr. Fealey at the Mayo Clinic in Rochester, Minnesota. For the first time in six years, I have a diagnosis other than I am insane, which has been the opinion of many a doctor throughout my struggles with my diseases. Rather, I have three concrete diagnoses which came from my visit to Mayo Clinic. The first is POTS. Now, my POTS is primarily- and barely- under control with a simple beta-blocker. For this I am glad. My second diagnosis was a bit more of a surprise: PCOS (Poly-Cystic Ovarian Syndrome). Though nothing is physically wrong with my reproductive organs, my testosterone levels are sky-high, a syndrome which was first diagnosed in women with poly-cystic ovaries. The name stuck, but the name does not necessarily mean what it states. Thirdly, I have dysmetabolic syndrome, a syndrome in which I cannot use insulin properly- almost like diabetes. Instead of using glucose or making sugar-complexes (fat) from the glucose, my insulin is unable to do anything with the glucose, so my blood sugar levels are usually high, despite feelings to the contrary.
Hello
in Dysautonomia Discussion
Posted
Hello to all of you!
My name is Hannah, but I like to use Handtalk as my online name. Handtalk stems from my knowledge and use of American Sign Language. (My hands 'talk'.)
I recognize many of your names from www.NDRF.org, where I originally started, but my parents have banned from NDRF. Thus, I have come here.
I just got back from meeting with Dr. Fealey at the Mayo Clinic in Rochester, Minnesota. For the first time in six years, I have a diagnosis other than I am insane, which has been the opinion of many a doctor throughout my struggles with my diseases. Rather, I have three concrete diagnoses which came from my visit to Mayo Clinic. The first is POTS. Now, my POTS is primarily- and barely- under control with a simple beta-blocker. For this I am glad. My second diagnosis was a bit more of a surprise: PCOS (Poly-Cystic Ovarian Syndrome). Though nothing is physically wrong with my reproductive organs, my testosterone levels are sky-high, a syndrome which was first diagnosed in women with poly-cystic ovaries. The name stuck, but the name does not necessarily mean what it states. Thirdly, I have dysmetabolic syndrome, a syndrome in which I cannot use insulin properly- almost like diabetes. Instead of using glucose or making sugar-complexes (fat) from the glucose, my insulin is unable to do anything with the glucose, so my blood sugar levels are usually high, despite feelings to the contrary.
I must go for now.
Yours truly,
Handtalk