Mayra Diaz

On 9/23/2019 at 6:45 AM, bombsh3ll said:

POTS in teens is recognized to remit spontaneously more often than not. 

If you have the money to go there without it causing financial hardship then by all means, but I would not advocate anyone spending the kind of money this facility charges if it is going to compromise their own or family's financial security or lead to debts. 

There are other experiences online that you can read about this center, Ilana Jacqueline at letsfeelbetter and Jenna at parasympathy have both been there. 

I have personally spoken to a staff member there and corresponded with them directly about what is offered, and there is certainly no secret magic bullet that only they know about. 

As for my own illness we are now highly certain of a structural cause, either a spinal cerebrospinal fluid leak caused by a combination of weak dura and the very forceful valsalva that immediately precipitated my illness, or craniocervical instability. Both are treated with surgery, not biofeedback or counselling.

B xxx

 

Do you know any doctor who treats dysautonomia caused by cerebrospinal leak or craniocervical instabilities?

which autonomic specialist are you seeing?