Susanna

Thank you…this is helpful and reassuring to know that others have abnormal increases in BP from doing simple things like tying shoes. I think it has helped me with angina but I’m not seeing improvements in POTS or dysautonomia. I find I still have heart fluttering and irregular beats. I am woken up with very low blood pressure episodes. Still looking for the magical cure for labile BP and HR…

On 2/24/2022 at 3:34 AM, MikeO said:

Well i am on the two week mark taking Ranolazine. So far my headache has cleared up, no mystery GI issues and i am feeling better when i get up in the morning. Down side i have seen a change in my resting blood pressures (77/48) even though my daytime upright readings are pretty stellar (128/87). 

I am sure i will be talking to my Cardiologists nurse yet this week. I see a change in my Amlodipine coming.

Have you exercised and taken BP readings right away? I thought I was a normal POTS patient until I started monitoring that and found my BP was 208/160 when I walked briskly across house. The strange thing is it’s not predictable. Some days my BP is 65/43 lying down and others it’s normal. Curious for any updates you have on ranolazine…

I was prescribed ranolazine as well. I’m still trying to figure out if it works. I get severe hypertension with mild exercise and it does not seem to have done much for that. My HR has gone down a bit but not to the normal level.

I found that DAO supplement does work if taken before eating.