I'm not diagnosed officially with dysautonomia but doctors have been treating me as such and I generally consider myself as having some kind of dysautonomia due to symptoms like quick fatigue, slow systemic updates to postural changes, vomiting from a relatively minor exertion, always being tired, other things. My BP is about 110/70 normally.
I read up here before trying Prazosin, but because of the compounding effects on fatigue of extreme nightmares and sleep disturbance plus daily anxiety related to CPTSD, which I also have, I decided to try it.
Freakin' miracle drug so far. I'm pretty amazed. I've only been on it 2 nights so far, 1mg at bedtime, but they are the 2 best and longest nights of sleep I've had in ages. I do sleep for about 14 hours when I take it, which might be an issue after I get past the point of actually feeling catching up on rest, but maybe a smaller dose at that point will resolve things (assuming they make it in .5mg).
I mostly wanted to say, I am glad I tried it in spite of cautions. It will affect different people differently, but prazosin may be more worth a chance for dysautonomia patients than it seems. You are not guaranteed to have effects this good, but it turned out for me to be very worth it.
Prazosin?
in Dysautonomia Discussion
Posted
I'm not diagnosed officially with dysautonomia but doctors have been treating me as such and I generally consider myself as having some kind of dysautonomia due to symptoms like quick fatigue, slow systemic updates to postural changes, vomiting from a relatively minor exertion, always being tired, other things. My BP is about 110/70 normally.
I read up here before trying Prazosin, but because of the compounding effects on fatigue of extreme nightmares and sleep disturbance plus daily anxiety related to CPTSD, which I also have, I decided to try it.
Freakin' miracle drug so far. I'm pretty amazed. I've only been on it 2 nights so far, 1mg at bedtime, but they are the 2 best and longest nights of sleep I've had in ages. I do sleep for about 14 hours when I take it, which might be an issue after I get past the point of actually feeling catching up on rest, but maybe a smaller dose at that point will resolve things (assuming they make it in .5mg).
I mostly wanted to say, I am glad I tried it in spite of cautions. It will affect different people differently, but prazosin may be more worth a chance for dysautonomia patients than it seems. You are not guaranteed to have effects this good, but it turned out for me to be very worth it.