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SSuesue

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  1. On 9/21/2020 at 7:18 PM, Knellie said:

       I know that this is a dysautonomia forum, but I didn't know who else to ask. My doctor has recommended an occipital nerve block for my chronic migraines and then if this doesn't work then Botox. I am not sure if I should do either. If I do it, I am not sure if doing the nerve block or the botox is the better track. I would rather not do both because it is expensive. Has anyone tried Botox or an occipital nerve block for headaches? I am not even sure if my headaches are chronic migraines because of the symptoms that are associated with it. I do have POTS, but I am not sure if it is just that and chronic migraines, because some of my symptoms are not consistent with either. Any advice?

    I have had botox for my migraines for about 4 years and it worked great. The doctor will tell you it last for 3 to 4 months, but with dysautonomia and everything moving slowly, the shot lasted me 6 to 8 months and once it lasted a year long. You might get a migraine but it significantly reduces the amount of migraines and the duration if you get one. But the last time I got the shots it didn't work at all, so I stopped. I would try it if I were you. It's less invasive than a nerve block. 

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