Blueberry

On 9/18/2012 at 8:38 PM, targs66 said:

Thanks for all the responses! I took a lower dose yesterday, and took that earlier in the evening, so that I could work this afternoon. My sleep was definitely not as good as it was on the higher dose (which was still a very minimal amount), but I felt less "drugged" at work this afternoon. (I was very tired at work and napped as soon as i got home after my little 4.5 hour shift, but that's normal for me.) I'm going to stick it out, though, for a bit longer, even if I have to take less.

hi Naomi and Chaos - I'll definitely keep posting. Unfortunately, I feel like I make a poor "guinea pig" because I am so ridiculously sensitive to meds. I'd be very curious to hear how others with CFS do on this medication.

jpjd - the doctor was quite conservative, and didn't really talk about the effect on the immune system (however, it was just a brief phone consult so that he could fill the Rx). There was an insert that came with the mailed prescription, and it didn't mention it either - I wonder if they are being very careful not to make claims that are not entirely proven yet -?

Issie - let us know if you decide to start taking it?

Dani - wow, glad to hear how well your mom and her friend are doing on it! My brother has MS, and I often wonder, given the family connection, whether my problems are also autoimmune related. Do you have any idea as to whether it took them some time to adjust to side effects?

As I said, I'll keep posting about it.

-Targs

It might be worth getting checked out for lyme disease and co infections. Find a good lyme literate gp if you can.  Alot of people who want tests get them sent off to German labs. Have a look at Tick talk uk . Best of luck in finding out whats going on.