Shelly

12 hours ago, Sushi said:

Yes, that book was a real eye opener for me! I happened to live in the same city as Lyn Fredrickson and participated in a support group offered by her hospital. Reading that book gave me the first clues as to what was wrong with me. That was a long time ago and I never expected my prolapse and regurgitation to progress—but they did this past year and I had to have it fixed. But for most, it doesn’t progress—still, good to have regular echoes.

Hope you have made a good recovery. I have mild regurgitation too. It’s unlikely that it will progress but there is always that small chance. That’s great you lived in he same city as Lyn Fredrickson and there was a support group. I live in England and none of the doctors here seem to know anything about it. 

Apparently 40 percent of people with mitral valve prolapse have dysautonomia. I have mitral valve prolapse and I know I have dysautonomia due to various symptoms. There is a book called ‘confronting mitral valve prolapse syndrome’ by Lyn Fredrickson which explains it all. It was a life saver finding this book as I thought I was going mad having all these symptoms and not getting any answers from the doctors.  The book also explains that although you were born with mitral valve prolapse the symptoms can be brought on later in life by a stressful life event like childbirth, bad virus etc.