ang22676

6 hours ago, Pistol said:

@Angela crouch - I developed POTS at 42 and got a lot worse during menopause at 50.  My two older sisters, who also have POTS, DEVELOPED POTS during menopause. The hormonal changes seem to affect the ANS. My autonomic specialist had mentioned to me the possibility of it worsening with menopause and he also mentioned that hot flashes lower BP and therefore could trigger unwanted autonomic symptoms.  

I agree. I was lucky in that my OB/GYN, that had been my physician for year,s was willing to educate herself about POTS and worked with my PCP and specialist.  She did not want me to take Hormone replacements due to the effect on the ANS ( although they were cleared by my specialist ).  I did have to increase and alter my meds and that helped a lot with POTS.  There are many natural supplements that are effective for menopause ( personally I took chaste tree ). 

You might want to either check with your gynecologist or see someone who is open to treating your unique symptoms. Often a physician in a university setting is more open to treat challenging patients. Also - do you have an autonomic specialist? If so he/she may be able to recommend someone. If you do not have one it might be helpful to see one at this point. You could refer to our physician chart. 

Do you have a family member or friend who could help you with finding and going to a doctor?  I understand how difficult it can be to leave the house when you are this bad but at this point it appears that you are not able to improve with the usual remedies.  Best wishes!!!!!!

I have been unable to find a Dr that seems to know much and since I don't have health insurance no Dr wants to see me. All I do is sleep but can't get up to do anything. I do feel hormones have made me worse. I'm not sure what to try anymore. I have hrt creams but they seem to make it worse if that's possible. Thank you for your response! 

Please help! I was diagnosed with pots 5 years after symptoms started. Started in 2007. I was able to deal with the symptoms and had a few good years after the Dr started me on Xanax because he thought I had anxiety but it helped with dizziness. I'm now getting ready to turn 44. I've had blood work show I'm in menopause. My issues have always been dizziness and nausea. Heart rate doesn't always jump so high but lately I've been bedridden 3 times in the last few months. Absolutely miserable and scared. I'm so dizzy in all positions, I can't even go to the bathroom without feeling so horrible, no showers, can't do any simple task. Legs hurt when I would stand for over a minute but right now I can't do that. I get hot and sweaty out of nowhere then I'm cold. I know I'm leaving out allot as my memory and thoughts are not great. I'm having a hard time with Drs and frankly I can't get up to go see one. I take salt sticks for dysautomia, drink 3 liters of water and eat mostly protein as I'm sensitive to most food, meds and I can't do electrolyte mixes that Drs recommend. Not Gatorade or anything. Everything makes me feel sick. Did I get worse because of menopause? Someone please please help me. I just try and sleep. I woke up with an episode this morning and have had anxiety. I definitely don't want to continue to live like this. It's not living. Thank you for any help!