I don't have POTS - I have neurally-mediated hypotension and pretty severe CFS. I have been going through a bad patch since mid-July, probably triggered by anxiety/stress (the source of which is still unresolved).
Like with any flare, all of my usual symptoms, especially unremitting exhaustion and weakness, have been worse. However, one thing that is relatively new is almost-constant head bobbing in time with my heartbeat. I've had this before, but it only seemed to occur when I was especially tired or had overdone it. It's now almost constant (as I sit here typing, it's doing it).
I've looked it up, and I think it's referred to as "De Musset's Sign." It's not an extreme motion; just a gentle bobbing of my head in synch with my heartbeat. I am able to stop it if I consciously hold my head still, but if I'm relaxed, it starts. I've said for ages that my heart "pounds" (not tachycardia - my HR rarely goes over 80 - but a feeling that my heart is really thumping in my chest). The heart pounding is especially bad when I'm lying down trying to sleep; of course, my head doesn't bob then!
A bit more online research indicates that this can be a sign of aortic insufficiency or aortic regurgitation. However, I had an echocardiogram done last January that was supposedly normal.
Is this yet another one of those "don't worry about it" things?? Any insight would be greatly appreciated.
Hi There did anybody ever figure out what it is? I really need to know. I’ve been suffering from this for 4 years. Doctors look at me like I came from a different planet. Lol. If somebody has some kind of info I would really appreciate it.
De Musset's Sign (Head Bobbing) - Anyone?
in Dysautonomia Discussion
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Hi There did anybody ever figure out what it is? I really need to know. I’ve been suffering from this for 4 years. Doctors look at me like I came from a different planet. Lol. If somebody has some kind of info I would really appreciate it.