Nansea

My recent PFT also showed low DLCO, 49. Same as yours...how ironic. I’m seeing a new Pulmonologist at the end of the month, but I’ve been trying to do some research in advance. I found one study showing DLCO could/should be measured in POTS patients both supine and upright. Considering our tendency towards low blood volume and blood pooling, it makes since to me. I understand there are many reasons for low diffusion rates; however, I’ve not found many reasons/ treatments for SOB in POTS. I just wanted to touch base, and let you know there one more of us out there. Have you discovered anything new about your condition? 

On 6/1/2018 at 9:13 PM, blizzard2014 said:

I had a DLCO of 49. But apparently small airways disease and blood clots can also cause low DLCO. I know the HRCT only looks at one part of the lungs. They looked at the base of mines, so who knows. Just be careful with all of the CT scans. 1 low dose CT scan with contrast can give you 10 milisiverts of radiation. It all adds up and can cause cancer risk. If I would have known this I would have refused the scans. But sometimes the scans can save your life and that negates the small risk of cancer in the future.