Shelby jean

I was admitted into the hospital last night for my port hurting as well as my ze, they couldn't get my port to flush so they couldn't use it and said to contact my surgeon. I don't know what to do until then, it is very painful. 

How do I know if there is a blood clot? Every time I ask a doctor about it the just blow me off like it's nothing

28 minutes ago, Scout said:

Is this quite common in Dysautonomia?

I notice my HR speed up a lot when swallowing drink or food, and it then slows down afterwards. I figured it has something to do with the vagus nerve. Can be quite uncomfortable. 

 

Try asking your surgeon if outs possible to put a balloon in to help you swallow. I did and is helped tremendously. 

Mine was due to my esophagus wasn't opening all the way so they put a balloon in my throat to open it. Lasted about 3 months, now I have to have it done again. 

I'm new to this and had a bard power port put in less than a month ago and having some pretty severe pain where the port,is going into my neck. I have told the doctors and they've pretty much blown me off. I have zollenger ellingsons disease hence  the reason for the port.  Any suggestions would be greatly appreciated!

On 5/2/2012 at 8:57 PM, surfgirl14 said:

Hey Guys. So since I got my chest port in on March 2nd I have been having pain on and off that just goes away and is quite mild. But tonight it seems more server like on a 1-10 scale and 10 being the worst I would have to say a 8. It is a burning, achy, and uncomfortable feeling that spreads to my shoulder. I know there is nothing really wrong becaue I just went to my pediatrican today and she looked at it plus I go to a infusion center every week and its flushes fine and everything no problems. Also have no fever, or redness. I just want the pain to go away I don't know how I am going to go to sleep feeling like this. I don't want to get it taking out either its amzing for infusions and saves my veins. Has anyone else experience pain like this with their port? Not sure if it matters but I have a Bard Power Port. Any comments or feedback would be helpful.

Thanks.

I got mine put in less than a month ago for zollenger ellingsons disease and I'm already having pain where my port is. Trying too figure out why I'm having so much pain, mine goes up through my neck. Any ideas would be greatly appreciated.