MissyB

1 hour ago, KiminOrlando said:

@MissyB I'm sorry you are going through this. I don't have any of these problems, but I have read about it previously on this site - not exactly the same, but similar. Use the search function at the top and search 'fecal incontinence'. See if that helps you at all. Not sure if any of those people are still on this site, but you might be able to contact them. 

I'm sorry I can't help you more.

Kim

Thanks Kim 

Thanks Jojo

Med reaction burned through body and took out ANS and then caused denervation of bowel bladder gun now lost miscle tissue in vagina. Anyone know what this is? Steroids helping pass stool so neuro thinks ivig could work but confused when he says nerves could come back,,can vaginal wall tissue or rectal muscle just grow back? Anyone else had a normal pelvic floor get floxed or poisoned or some insult and suddenly have atropy or loss of function places? Particuarly anyone with vaginal or penile changes? It even stopped my periods. Confused on where soft tissue and muscle went. Its like my body ate it. During the rapid wasting of muscle and fat after drinking it i had burning up arms back mouth throat down through vagina everywhere..I feel its toxicity and ans got taken out while still on the med. MD thinks damage would have stopped after med stopped but like i said what if all the nerve damage already happened in the 8 days of the med and the tissue loss was was the fall out? I wonder if the toxin (s) are still in me or if it really was an autoimmune response and ofcourse ANS damage. I have pots plus bowel bladder gyn issues.... Anyone?

And Ancy

Thank you Jojo

Or if not in 5 months anyone have this happen?

anyone else have muscle and fat wasting rapidly after med reaction then rapid autonomic dysfunction -high cortisol then pelvic floor whiped out and atrophy? 

Anyone get floxed or have med toxicity lead to autonomic dysfunction and then what were your symptoms? Anyone else get neurogenic bowel and atrophied genitals or bladder? Terrified here. Neuro says ivig could reverse but I dont believe him. 

Anyone have vaginal or penile atrophy and have it reverse? If so did you do ivig or how did it reverse? 

Anyone have vaginal or penile atrophy and have it reverse? If so did you do ivig or how did it reverse? 

Anyone else have atrophy and anyone else have a med reaction or event that quickly led to dysautonomia with pots symptoms loss of sensation to pass stool, lack of engorgement and inervation, bladder changed and then have it lead to vaginal or penile shrinking/atrophy and neurogenic bowel as well as muscle atrophy and wasting rest of body? This began 5/15 when I started swish and swallowing nystatin oral suspension but had a horrible delayed reaction four days in. ANS already affected while still taking the med in first 8 days.