momtokippy

On 4/12/2017 at 10:42 PM, kalamazoo said:

You should get an oral glucose tolerance test. you fast, get blood work, then drink a solution of basically pure sugar and come back 2 hours later so they can check both your blood sugar and insulin levels. Since i was diagnosed i feel soooooo much better now that I know why i felt so horrible. When my blood sugar and insulin levels were really high I felt HORRIBLE, it aggravated my pots symptoms so much it's crazy i feel so much better now and i've already lost 20 lbs in a month

So what did you do to feel better? What changes or meds to you take for the insulin resistance.

On 5/17/2016 at 2:21 PM, Hello Darling said:

I'm now taking 7.5 twice a day and I feel AMAZING!  It's like I'm getting my life back!  I am in total shock over how good I've felt!  I feel like this is a miracle medication. 

great to hear you had a good response! Is this still working for you? 

On 4/14/2017 at 2:46 PM, jagpots13 said:

 I have been on propranolol ER about seven years now, 120 mg bid.  I have recently had to double that and still have a resting heart rate of about 98. I still feel like I'm racing. And it's not really helping posture really that much anymore. I can feel my heart rate rise  substantially again. I also take midodrine for low blood pressure. So far that is holding. I can't even lean down and my 63° house and pick anything up without going into full-blown pots mode again; sweating  profusely, swelling, nausea, migraine etc.  Much less go outside in this Mississippi heat. I almost immediately start throwing up and breathing is very hard. Was just curious about this drug now and any other possible new things that could help. Thank you guys so much for listening!

Leslie Precht 

It sounds like the propanolol does not work for you.  That's a lot of propanolol and it can cause other side effects.  Small amounts of propanolol lower heart rate while large amounts lower blood pressure more.  You might not need that. 

Hi Emily - how is she doing on this?  I am going to ask for it for my daughter.  All the other meds have not really helped.