Hi everyone, I seem to have POTS with high BP (prehypertension range consistently), and no one will touch it since Florinef would raise my BP. My last Dr. suggested I see Dr. Grubb, go to Mayo or Vanderbilt (in that order, I think). Toledo is closer to me than the other places. But I would have to wait to see Dr. Grubb for nearly a year, and the symptoms of sympathetic overactivity are pretty distressing. I could see Dr. Grubb's nurse (Beverly) sooner. Has anyone with hyper POTS seen Dr. Grubb's nurse? Is that a good route??
I initially saw Beverly because it would be more than a year to see Dr. Grubb. I got in within a month or so and she was wonderful! I'm scheduled to go back next month for a follow-up and don't mind seeing her again. She has been with him for several years and the meds and advice she gave me were spot on. I think it's definitely a good route to get your foot in the door.
Dr Grubb or Bev for Suspected Hyper POTS?
in Dysautonomia Discussion
Posted
I initially saw Beverly because it would be more than a year to see Dr. Grubb. I got in within a month or so and she was wonderful! I'm scheduled to go back next month for a follow-up and don't mind seeing her again. She has been with him for several years and the meds and advice she gave me were spot on. I think it's definitely a good route to get your foot in the door.
Best wishes!