LoLinda

Hi haugr and Chaos,

On ‎10‎/‎22‎/‎2016 at 10:10 PM, haugr said:

Thank you for posting.

On ‎10‎/‎24‎/‎2016 at 5:04 PM, Chaos said:

Thanks for posting this.  Was also tested thru this lab and found to have positive results.  Hope this leads to some more treatment options. 

 

Welcome

You can imagine, how happy I was finally having found a cause for my POTS.... Finally knowing what brings it about!! Now, regarding treatments, there are medical treatment chances and doctors as linked above. The problem is that the newest insight from a study by Prof Scheibenbogen indicates that even plasmapheresis offers only temporary relief. Well, the antibodies are simply reproduced after a while. (The study was on CFS patients. But this issue will be the same in POTS.)

So, honestly, we have to search for treatments ourselves. Being a researcher, I spent the last weeks scanning tons of research on what helps other autoimmune problems and there is so, so many harmless stuff ranging from resistant starch over vitamin D to prolonged water fasting, which actually do have research to support their benefit. No doctor told me about these!! I have resolved my CFS myself, and I am determined to get this **** POTS out of my life and lead a healthy normal happy life again, out of bed. Here I posted about this

I got tested - so I finally know what causes my POTS. In case anybody is interested, I have written down my experiences, here:

Labs which do the tests

Treatment: doctors, medical treatments, harmless stuff one can try at home

Research: how the antibodies cause POTS