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CB

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  1. Is there a possibility of having POTS without the "tachycardia" associated?

    My medical history; Systemic Sclerosis with some Lupus overlap X 15 years.  This includes GI, Pulmonary, severe Raynauds issues.

    Currently being worked up since being diagnosed with Disautonomia/POTS 6 weeks ago, via CPET (advanced cardiopulmonary exercise test), and also Spherocytosis.  Waiting for hematology workup at Dana Farber in Boston, and skin biopsy at Mass General.

    The one symptom I don't experience is rapid heart rate.  I DO absolutely have massive heart palpitations / pounding 24/7, even when supine.  My heart rate hovers around 70bpm and my bp has always run very low.

    Thank you in advance...

     

     

     

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