samip28

Hi! I'm not sure if I am allowed to ask this question since it is personal, but I was just wondering if anyone is involved or knew about a support group near the Pittsburgh area? Or if anyone could shed light on how I could find one.

Thanks!

I just heard the song "Tell Your Heart to Beat Again" by Danny Gokey. It really hit me.

Hi,

My doctor wants me to start exercising again. I can run but when I stop I black out so upright is out of the question. I was just wondering what you guys do to exercise. She mentioned the bikes where you sit down. Anything else?

Thanks!

kellygirl, thank you so much! I wasn't sure if I was getting some kind of reaction! I was going to talk to my doctor and ask her about. Thanks for taking that worry away

I'll look into hypothyroid.

They are flat. Just randomly placed white, flat spots on my back. Theyre no where else on my body.

So just this past week my boyfriend noticed these white spots on my back. They're only on my back and don't itch or hurt. Has anyone else experienced spots on back? Could it be from the medicine? I have been on metoprolol for a little over a month, any suggestions on what it could be. We don't think its skin cancer and when j search online nothing comes up, thanks!

Thank you! I'm pretty organized, and I'm trying to plan at least two weeks ahead that way in case something happens I'll have things ready.

I also think school is different from teaching! School isn't as fun as teaching is.

I keep asking myself if I can do this. But then I think of my kids and how much I love teaching. Granted this is before the school year starts, by the end of the year last year I was struggling and so miserable.

Thank you for all the advice and support! Yeah I'm going to tell my team at my next inservice along with my principal. I just don't want them to judge me even more especially since I am fresh out of college. This will be 2nd year teaching...

I never thought of OT, that's a good idea.

Thank you again for all the advice and support. I know this will sound silly when I have my family and my boyfriend, but it's nice to know I'm not alone in this fight. I was a little defeated after finally getting diagnosed because theres not a cure just faith that I will eventually heal. It's just so frustrating when i can feel my body weakening yet doc says it will just go away!

I wish you the best of luck in your teaching as well! Maybe use some of your tips to me for you as well.

p.s. I'm sure the kids would love the scooter! hahaha

If stairs are a must can be escalators so we can at least get up the steps...

Concerts or any type of festivals would have seating everywhere free of charge!

Thank you for the energy conservation strategies! I might give them a try!

I just got on the medicine maybe a month ago, I saw the side effects was fatigue so haven't really discussed yet with the doc. But when I go in for a checkup I want to talk to her.

Yeah I know I need to sit a lot, I have a few chairs and stools conveniently placed around my room haha hopefully helps. I just had inservice today and it was rough. I start school next Tuesday.

I hope the other teachers join as well would really enjoy their adivce! I haven't told my principal yet but I know I should soon just in case anything happens.

I'm currently a second grade teacher and am terrified for this upcoming year. I just got diagnosed and this new medicine makes me feel so weak. Any teachers out there with advice on how they got through the year? I did it last year but this year my symptoms are getting worse!

I know how you feel and how frustrating it is from going to being a part of the world to being an outcast. I like the song. I always thought these could be a theme song for all of us as well https://www.youtube.com/watch?v=xo1VInw-SKc or https://www.youtube.com/watch?v=KfDr_7LN-Ew because me never give up the fight! Always makes me feel stronger after hearing either of these songs.

With your selection and my two we could make a POTS soundtrack!

Thank you all so much! I know that there are so many diagnosed, but it's nice to see that I am not alone in this battle. I really appreciate all of your kind words! It means a lot

After 3 years, I finally got diagnosed with orthostatic intolerance and soft POTS. Everyone expected my spirits to be lifted, but we aren't even close to making me feel better. It has been a month and the medicine is making the chest pain constant and I just feel so alone. The doctor just keeps prescribing more meds, but I don't want to be doped up and drowsy.

I'm trying to be strong for my family. My doctors just keep repeatedly telling me this will go away, that I'll get better but I just feel like its getting worse.

I should be blessed that I can walk, but I just feel so alone. My parents don't know how to help and any friend I had has left me because I'm sick and couldn't get out.