Jump to content

stacy

Members
 View Profile  See their activity

  • Posts

    2

  • Joined

  • Last visited

 Content Type 

Posts posted by stacy

  1. Regarding Polls

    in Dysautonomia Discussion

    Posted

    Please keep in mind that any polls done on this forum are bound to be biased. Many people that have returned to good health are not spending their time here. Polls done on this forum do not give a true account of life for all dysautonomia patients.

    Michelle

    Thanks for your quick e-mail response from pots place. I feel bad for so many people that have such ongoing problems am wondering what is the norm if there is such a thing with POTS. I really like statistics, but I think mine are kinda skewed. Do you know how many people who get POTS actually do recover from it or let me word that differently can function outside their house...being able to drive again, have a conversation longer than 15 min without having to sleep. I know everyone is different, but if you could help at all with a percentage of success rate (working a part time job again), that would be great.

    Stacy

  2. Back Pain

    in Dysautonomia Discussion

    Posted

    Well, I wasted $50 on that doctor's appointment.  He said I probably pulled something and I should take Ibuprofen around the clock.  No UTI, I'm not pregnant, no nerve inflammation, and the list goes on, everything is fine.

    Now, I had already been taking Motrin and it didn't even take the edge off, which is strange- usually 600mg of Motrin knocks out anything for me, and this pain keeps burning away all day long, and is searing when I pick up Ethan or put him down.  It almost feels like it's wrapping around to my hips and uterine area at times- I am getting ready to start my period and as the cramping starts, the pain gets worse too.  What could this mean?  Maybe I'd be better off seeing a GYN.  Maybe I did just injure myself somehow.  It's just frustrating!! 

    Thanks for the responses and suggestions  :P

    interesting, because I have POTS with the same pain. I was told I have SI joint inflammation, but I've had it intermittently for 2-3 years seeing numerous doctors for it. so far my MRI shows up great, but the pain is still there. I'm seeing a rheomatologist tomorrow who thinks it could be spondylolisthesis, but I will find out for sure tomorrow. It is mind boggling with all of these problems and I was wondering if they were connected with a possible stenosis putting more pressure on my lower spine causing POTS symptoms, but I think that is more related to cervical (neck) stenosis. Any ideas on this would be greatly appreciated

    stacy

×
×
  • Create New...