Gitte

Thanks for your replies. It's good to know i'm not alone in this. I guess i'll just keep looking for a specialist in this area and see what happens.Good luck to all of you!

Hi everyone, i'm getting so tired of waiting for doctors who can help. The past months i haven't been feeling well at all (very tired, dizzy, presyncopes,gastric problems...). Usually i feel better in the summer and then everything gets worse again towards the winter, but this year i even didn't feel good during the summer. A couple of weeks ago i fainted at the physiotherapist and i just couldn't get up anymore. I fainted several times when i tried to get up and it took me a few hours before i was well enough to get home. My Bp stayed very low (8/5) and my pulse very weak so they called my cardiologist. He just answered this is normal for me and that they didn't have to do anything, i didn't even need any follow-up .This makes me so mad. Every time i see him (once a year), i tell him i am not ok but he never suggests anything to make it better. I asked my GP to see someone else, but apparently this takes a lot of time and i'm afraid things will just be getting worse.I wish there was something i could do .

June,

Do you know why she doesn't want to go? Is she afraid of the way others will react when she doesn't feel well or does she feels she is just too weak to attend school?Maybe it might help if someone of the school staff can talk to her? Just a thought...

I hope she feels better soon!

sounds hopeful!

Thanks for your replies!

Corina: i haven't found a specialist in my country yet (i live in Belgium), but i keep looking!

Hi everyone,

I've been reading on this forum for quite a while, but always hesitated to post (my english isn't that great).

I'm having health troubles for several years now, and my former GP (we moved) catalogued them as "orthostatic intolerance, POTS". I still think that was the most accurate diagnosis i've had since then, although my current doctors disagree. According to the cardiologist who advised a pacemaker, i suffer from vasovagal syncope; according to my current GP: 'everyone has this when standing up, i just have a bit more reaction to that' ;and my local cardiologist is convinced it isn't vasovagal syncope, but he has no clue as to what it could be.

Last year, i've had a pacemaker implant and although there were quite some complications, it does help to prevent the fainting (i used to faint several times a week in bad periods). Unfortunately, i still have a lot of other complaints ( GI problems, coat hanger pain, headaches, tiredness, chest pains, trouble sleeping, presyncopes , etc...) which aren't dealt with at he moment. It seems as if everyone always focused on the syncopes and now that problem is 'solved', i'm supposed to feel fine ( but i don't).

I wish i had at least one doctor who understood, and would make the effort to look a bit further than what is written in his manual (POTS is clearly not in it).

Well, i suppose one should never give up hope.

I'm very glad to have found this forum, it contains a lot of information and, although i wish a better health for all of you, it's quite comforting to know there are others like me, who are struggling to make the best of it.

Thanks for reading!

Gitte