Kimberley

I don't know why but my instant gut reaction is that they called in a mystery shopper to acheive a way of getting rid of you without being blamed/taken to court for disability discrimination if they do sack you. Could be wrong but strong feeling that's what could be going on.

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Thanks for reply, Just wondering if I should seek legal advise of just give up.

Kimberley

Sorry I hit the wrong tab. Anyways.... This report was so bad on my proformance and this secret shopper even wen so far as to say How messy my hair was and how bad my appearance was. I am in shock. I am one of the best dressers there. I even just was featured on a Bare Minerals Infomercial for Mineral Makeup. I am not saying that I am a beauty queen I sure have my bad days but I am dressed nice when at work. I am so shocked and upset I really deel descriminated aganist. Am I crazy or do I have any leg to stand on here? I know some people say just leave but This feels just so wrong to me. I would really appreicate honest opinions here. Thank you so much:)

Kimberley

Hello Everyone, This may sound petty but I am so Mad right now. I have a part time job that I have had now for 8 years. It is at a womens clothing store at the mall. I have been there for almost 8 years now. I took a medical leave for 3 months around October of 05'. I am really sick again. This company allows sick leave for Part Timers up to 12 weeks unpaid like once a year. This company knows I have a medianl condition. I was told by my boss once that I was a burden on other employees and out of all those years I have never really taken sick days called off except for the medical leave in 05'. So anyways they had a secret shopper com in to the store and I was with 2 customers at the same time and was approached by this secret shopper and had the worst write up I feel ever existed.

Yes, you do have rights.

http://www.eeoc.gov/types/ada.html

My suggestion (and take it with a grain of salt, I haven't worked in two years now) is to speak directly to whomever is in charge of scheduling, explain to them the situation and your limitations and make sure they understand what they need to do to accomodate you. That "everyone has their excuses" crap needs to stop NOW. Make sure they understand that this is a real disability you are dealing with. People will often try to be dismissive of invisible illnesses, and the longer you let them get away with it the worse it will get.

Best of luck to you.

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Thank you so much for your help. I hope I am answering this post right.

Kimberley

Yes, you do have rights.

http://www.eeoc.gov/types/ada.html

My suggestion (and take it with a grain of salt, I haven't worked in two years now) is to speak directly to whomever is in charge of scheduling, explain to them the situation and your limitations and make sure they understand what they need to do to accomodate you. That "everyone has their excuses" crap needs to stop NOW. Make sure they understand that this is a real disability you are dealing with. People will often try to be dismissive of invisible illnesses, and the longer you let them get away with it the worse it will get.

Best of luck to you.

Hello Try Medical Mutual 1-800-722-7331 ask for Debbie. This is worth a shot.

Kimberley

Hello, Yes I do get Botox, Have been for about 1 year every three months shot in the back of my neck to control dizziness, nausea, and then headaches. I see Dr. Stillman at the Cleveland Clinic. And I am diagnosed with POTS with Migraine. Does this work all the time no Sometimes I feel better after this treatment and sometimes not so much. Luckily my insurance covers this and I have such a high deductable that I signed up for charity help at the Cleveland Clinic and whatever insurance does not pick up they cover 75% thank God!! I just got a call from Dr. Stillman's Assistant and they are actually starting this program in Feburary she called it 3 weeks if INTENSE THERAPY I have to go to the Cleveland Clinic 5 days a week from 8:30am to 5:00pm Monday through Friday. She needs to give me more details she will be calling me soon, but I am going to do it. This is for people who suffer from migrane systoms and pots and I am on the list for this new program. I will let everyone know about this as I find out.

Kimberley

Hello Everyone. Just wondering if I have any Legal rights at my part time job. I feel like I am being Harasst because of my Illness (POTS) I took a leave about 1 year ago and came back with a doctors note saying I could come back and work the minium allowed by the Company. Yes I am sick but like to work and I keep trying. I do not call off on my schedule but they are always trying to schedule me more and when I constantly mention my doctors note they say well everyone has there excuses. Is it just me??? Thanks And Happy New Year to everyone!!:)

Kimberley

Hello, Just read that the Leader anf founder of the Australian Band Childresn Group the Wiggles had to drop out because he was just Diagnosed with Orthostatic Intolerance. They just figured it out. First they mentioned he had to leave because he was fainting and was disoriented alot and Doctors could not figure out why. They finally did.

Kimberley

Hello, I am not a Fainter either But I always feel like I am on the Verge of it. People just do not understand at all.

Hello everyone, I will be attending the Parma Meeting. If there is anything I can do to help please let me know.

Kimberley

Hello Everyone

I would also like to attend too. Any sunday in May or June is Fine with me. If anyone wants to contact me I will also help out if needed. Thanks

Kimberley

Hello Everyone,

It has been a very long time since I Posted anything. I have Pots and have been trying to fight it for a long time. I was always a very busy person. A happy person. Now seems like I'm just getting weaker. I'm learing more to listen to my body instead od always pushing through. I do not really talk to anyone about my Pots like friends co workers. I do not like having this condition I felt who wants to hear it? Seams wierd that I look normal and not sick but Oh My Gosh If people only knew. Anyways, My sisters friend was just in the Hospital because she felt dizzy neauseated (sp) and juust passed out. My sister called me to let me know they let her out and told her it was Anxiety, like what you have. I could just scream!!!!! I always thought Anxiety was something you could control. To me Pots is Not. Can someone please clear this up with me? Am I wrong about this? I just started Physical Therapy and Any Doctor who sees me always says "You have a great attitude about this" My Pots that is. Do I think Pots Stinks YES But I really try hard to overcome. It is getting harder and harder. I know someone out there understands this. Just needed to say all this.

Kimberley

hi

I went on a cruise and was fine. I mean i was not healthier than usual but i was not worse. There were episodes of feeling sea sick but i think that may be more of a personal thing than a POTS thing. I admit when i was 15 i went on another cruise and i fainted and the drs gave me a needle of some sort so i could stand up strait again. However, that was well before i got sick so i think thats just my body being freaky due to the heat. Good luck!

Hello, I think Dr. Mark Stilman (Nerologist) at the Cleveland Clinic is VERY GOOD. He also knows Dr. Grubb and sometimes when he (Dr.Grubb) need a second opnion on a paitent he sends them to Dr. Stillman. Even his Nurse has Pots herself. They really know about POTS.

I had the same experience as the others here.  Kimberley, who is Dr. Stillman?  Is he in Cleveland?

Kristen

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Hello, I seen Dr. Fuad At Cleveland Clinic. She is very nice but Hard to understand with her accent. I have been with Dr. Stillman ever since. What is wild is that DR. Stilman and Dr. Grubb know each other and Dr. Grub sometimes sends a paitent to Dr. Stilman every once in a while for a second opinion. I Love Dr. Stilman and am very Lucky to have found him. Anyways, good luck with Dr. Fuad she is really good.

Guess what my referal finally when though!!! I am going to to Cleveland! I am very happy yo me going but......... worried. I worried that what the outcome is going to be as this seems like a last chance kind of thing! After going from doctor to doctor telling me i have every from heart problrms, to having a pacemaker put, to be told it was in my head, to derpression, and the list goes on. Then a fem months ago telling me I have POTS. I turly beleive POTS is the 1st thing that really makes since, and meets all the things that seen to be going on, but am worried I will go out there and say, yes you have POTS like the other doctor, and say there no real treatment that will work for you, or come up with a hole new thing, I know that sounds dumb, but after 5 1/2 years of going thouhg this I have found out any thing is possable. At the same point I am really happy about going and hope they can find the right treatment for me! I know this my sound  dumb I am just scared.

So I am off to Cleveland for test. My 1st appointment is on October 18. The first test I have is going to be a tilt table test. ( I had one about 3 years ago, and i was the worst thing I got sick, and passed out, I hope that doesn't happen again, plus I not sure it it will all work the same now as I have a pacemaker?) Anyways thought I would give you all an undate of what was going on!

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Hello everyone. Would you all consider Pots a Condition or Disease?

Thanks:)

Hello everyone. WOW I have been nausea like all my life. That and being dizzy then headaches. My Nerologist says nausea is a form of minegrane. The media gets everyone thinking Mingrane is just headaches. I get so nauseated and Dizzy so much like I may have just 1 good day a week. Any meds I've tried do not help. I've just sort have learned to live with it.

Hello, The Tilt Table Test was the last test I did before They said I had Pots. Actually I was thinking how stupid I felt standing there and then I got Very Ill and Passed Out. I lasted a whole 4 Min. They asked me How do you even Drive. So That is how they figured out I have Pots. It was worth it.

Hello well, I get that on the left side of my neck, I call it Kinking my neck, to me this is like a charlie horse in that area. Then the headaches come. Dr. Stilman gave me Botox there really helped that. I hope we are talking about the same thing.

Thanks Kimberley

Hello Everyone, It has been a while since I have posted anything. I was helping my Mom who was the primary caregiver for my Grandmother who had Alzheimers. She recently passed away. I also have 3 jobs. I'm a Wedding DJ, I have an Ebay store, and I work part time at a Womens clothing store at the Mall. I also just moved. I really have a hard time with accepting I have POTS. Yes, I do have bad headaches, Dizzy, Nauesea, massive tingeling on my scalp. I always still push myself. I do like to work and find there is never enough time for all I like to do. I'm so Fatigued no one would believe it. I"m from Cleveland, Ohio and I see Dr. Stilman from the Cleveland Clinic. He even did Botox on me. That helped some but boy do I feel bad after a few months when the Botox wears off. He tells me I need to take a break from working to figure this all out. He feels I have Full Blown Pots. Yes I had a Tilt Table Test Lasted 4 Minutes. I always think WOW, I made it through the day like it was the hardest thing. This is very hard to accept that this POTS is going to change my lifestyle. I'm on effexor 150mg a day. Stopped beta blockers. I've really gotten used to feeling I'm gonna faint at any time, and I feel like I have the worst flu known to man kind ALL THE TIME. and My Fatigue is Unreal!!!! I have to go back to Dr. Stilman on the 15th. Please do not get me wrong. I love checking in to see what everyone is saying. I do not feel I will ever escape this EVER. Does anyone understand what I'm saying? I know it must be hard to believe when I say I have all these symptoms and still push on, but it is true. I have no Idea what Dr. Stilman will do on this Visit. Thanks to anyone for reading this. I hope everyone else is doing OK.

Kimberley

Hello everyone. I know I dissapeared for a while. I helped my Mom out who was the primary caregiver for my Grandmother who had Alzheimers. Between that and working 3 jobs and Moving I just had no time. My Grandmother just recently passed away. As for headaches, Dizzy, neausea, weak, Massive Tingles on my scalp. This Pots is really bad for me. I still keep pushing myself. I get this attitude that I refuse to believe I am that sick!!!! It is awful. I'm a wedding DJ, I have an ebay business, and I work part time at a Womens Cothing store at the mall. There does not seem to be time for everything I like to do. I see a Neurologist Dr. Stillman. He even gave me Botox. It helped alot but I can really feel the extreme difference Months later when the Botox is wearing off. Dr. Stillman tells me that I need to understand this will be a Lifestyle change for me. It is very hard for me to get this through my head. I'm sick most days. VERY SICK. I still push. Is there anyone out there who is like me?

HI,

Thanks for sharing this treatment.? It's the first time I hear that.? Do you know why the neurologist suggested botox?? How does it work for POTS?

Ernie

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