Darlene72

Hello Fainting Goat,

I'm new here as well. I know how frustrating it is just wanting that diagnosis and to be listened to and treated fairly by doctors rather than just being a "patient" or a "drug seeker". I can relate to the fainting problem, I actually fell out behind the wheel of my car and hit a telephone poll. I was in the hospital for 3 days, I was dehydrated, my bp was low (weird considering I am on bp meds), my thyroid levels were through the roof, they sent me a psychiatrist because I had ativan in my system (tachycardia) but never said this could have contributed. I am learning on this site so, hang in there and keep reaching out. You will get the support you need. Hope you feel better.

Thank you all so very much. I am actually have a really hard time with this, knowing that my previous Drs knew this but did nothing. I had one actually say "I am baffled. I don't know what the **** is wrong with you." Rather than explain what's going on, I never would have put this all together on my own.
I will definitely check out the list and I have no luck, I will start a new thread. Again, thank you all for your help.

I was told in 2008 that my bp rises with movement from a cardiologist and was put on BP meds. The older I get, so many different things have been going on with on with me that my every day life is getting effected. I don't go out, can't walk without my heart pounding and extreme sweating, hate heat LOVE cold, tremors, bowel problems, anxiety/fight or flight, hypothyroid and much more. 2 weeks, a visiting P.A. at my Dr office said I have Autonomic Dysfunction and to "Google it"! So I did, I found this site which is AMAZING to say the least. I no longer feel crazy or alone and want a REAL doctor that will take this seriously and can help me. I went Google Drs who handle Autonomic Dysfunction and I'm getting psychiatrists, Neurologist, Surgeons, Cardio.. Can someone give me some advice as to where to start first?

Oh..and no appetite. Hardly ever. And when I do feel like I'm starving, 3 bites and I'm full. But, continue gaining weight.

Constipation

diarrhea (never a happy happy medium here)

Sweating and chills when I have to go

Stomach gurgles so loud it sounds like train!

Burping and farting (lol sorry)

Back pain

And it makes my belly swell to wear I look 6 months pregnant!

Milk of Magnesia has become my new friend!

I am finding these discussions more and more helpful with each one! Cala, I had no idea that the adrenaline was part of this too. This is the illness of many hats!

I was just telling someone that I hate not being able to do or say anything that may cause the slightest bit of a confrontation without the "fight or flight" tingles and trembling throughout my entire body. I pass out also (even crashed my car into a telephone poll) and sometimes I get so dazed I feel like I'm dreaming. WOW!

Hello KareBear!

I mean this in the most loving way, I am so glad I am not alone! I am new here as well, looking for answers and this is a HUGE issue for me. I literally feel my body thermometer just does not work and having a full thyroidectomy in 08' didn't help. I either have the chills or I am sweating to death. I can't even go outside for long periods of time, hate walking because I sweat so bad, my hair gets drenched and I feel like I have no air around me and can't cool down, I even sweat in 20 degree weather! My kids say I can move to Alaska, cuddle with a penguin and still sweat.Or I'm so cold, I put on a blanket shivering and sweat again 5 minutes later. Between brain fog, palpitations, soreness in muscles, sweating etc.. I felt like I was insane! No one understands, family or friends. They say i need to exercise more, lose some weight maybe (impossible), I'm antisocial (i used to be a social butterfly) or just don't want to be bothered. They think its not possible for me to be as tired and weak as i say i an. Dr's think I'm insane! I would think they knew about this stuff or would have saw it in my paperwork? I was diagnosed as having Autonomic Dysfunction in 2008, was given BP meds and sent on my way, no explanation, and not one Dr went back to it since. I just found out the name 2 weeks ago! If I heard or read the word Fibromyalgia one more time, I was going to scream because I knew it was something else. I don't even know what my normal body temp is, but I do know that within the past 5-10 years, I never get a fever when I'm sick. I feel feverish, my skin feels hot to me but not others and the thermometers maybe go to a max of 99. That's pretty scary if fevers fight I infection and I am not getting fevers?

This has had such a negative impact on my life for so long but now, knowing I'm not alone, I feel like I have some hope. I will continue on here because at least someone understands. Thank you so much for your post

Sorry, last one. . My brain fog makes me forget what I wanted to say sometimes. I just found out what the name is from a PA from my Dr office who said it nonchalantly while looking at my file.. I am so glad I found this forum, now I feel I have people who actually understand. Thanks for being patient with my multiple posts and responding )

One of the worst things with this is, if I Google any of those, it comes back Fibromyalgia and I know that's not what it is. I was diagnosed with this a 2006 but was never given a name for it. It was just "your blood pressure flucuates with movement". A heads up for the rest of it would have been nice...

Oh wow..I get this vibration in my groin, kinds feels like my ovary but it's a little further to the right and cell is my hands! Every move I make, my heart does not like it. Weight control is horrible! Are you on medication for it?

Hello,

I'm new on here and I found your thread so I registered to join in the conversation. Do you feel like you "forget to breathe" and it feels like you "HAVE to take a deep breath and kind of do it on your own?"

I get this feeling out of nowhere and it freaks me out. I have so many things that go on with me and I don't even know if it's all related. I get pins and needles in my hands, feet and even in my buttocks and my crotch area! I'm either sweating like I ran a marathon in 105 degree weather and feel like I have no air around me or I have the chills. I can't go near any kind of heat or I sweat and feel "out of it", I get horrible brain fog and people say they can literally see the color drain out of my face, I am so weak, I can't exercise, I can't walk up a flight of steps without my heart pounding, I have muscle pain and so much more. Problem is, I had a full thyroidectomy in 2008 so I'm hypothyroid and don't know which is causing the problem. Does anyone else get like this also?