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FadingOUT

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  1. What medication was he put on to increase his bp?

    They put me on flurocortizoned to keep my bp stable (so it would not drop low). Is he on the same kind? Just curious

    Being a newbie, I am still learning about POTS.  My 13 year old son was recently diagnosed.  On Friday, we found out that he lost 8 lbs in 7 days.  His appetite has decreased significantly since his dr. added medication to increase his blood pressure. 

    Has anyone else experienced these problems?

    He is still extremely dizzy upon standing and is unable to stand still or walk without assistance. 

    His doctor told me Friday that he has several POTS patients that are now on feeding tubes. 

    I'm getting a little nervous!  I'm the one that is suffering from anxiety now!

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