anemone

Today, 08:07 AM Post #1

Newbie

Group: Members

Posts: 3

Joined: 20-December 04

Member No.: 364

Hello, forgive me as I am still very new here. I joined to help a friend and have since been going through a nightmare with him and the MSA he has. My friend had come down with pnuemonia and was admitted into the hospital. all seemed to be going well and after 4 days he was about to be released to go home. on Monday night he begged me to come and stay at the hospital he had a bad feeling something was about to happen. I decided to spend the night and now I am glad I did. after he was given his meds, IV antibiotics, Iv Steroids which he had been recieving all along while there and ativan to control the violent tremors from the albuterol in the nebulizer treatments he was hooked up to the ipap machine for the sleep apnea. all seemed fine until around 3 am when I was awaked by his loud breathing and thrashing around in the bed. he ripped the ipap mask off and he was obviously in distress. the nurses continued to come in every hour or so and I would ask what was going on they replied this was normal for him. at 6 am he became highly agitated and began to have even more violent tremors and he catapulted out of the bed to the floor where he seemed to be having seizures (HE HAD BEEN UNCONCIOUS ALL THE WHILE). the hospital staff was useless and they just kept giving him more and more IV drugs ativan and then haldol all awhile he became worse eventually he coded and they intubated him. he has been in a coma since. he came to with another violent episode after the initial 24 hours and went back into the coma. he has been in the ccu since the first episode and now I am told he had a history of being psychotic and the meds they gave him may have brought on the seizures. I dont understand any of the things that are happening and wondered if anyone here could shed some light on this. My friend is also a member here though I am not sure he had posted in along time. his name is Brian Markey from shrewsbury mass. Please if you are friends of his, know him or have any info that may help me understand this situation please email me either on the group or off list at brenzi@AOL.COM right now I am waiting word on weather they had enplugged the life support equipment or have a prognosis. thank you

Hello, forgive me as I am still very new here. I joined to help a friend and have since been going through a nightmare with him and the MSA he has. My friend had come down with pnuemonia and was admitted into the hospital. all seemed to be going well and after 4 days he was about to be released to go home. on Monday night he begged me to come and stay at the hospital he had a bad feeling something was about to happen. I decided to spend the night and now I am glad I did. after he was given his meds, IV antibiotics, Iv Steroids which he had been recieving all along while there and ativan to control the violent tremors from the albuterol in the nebulizer treatments he was hooked up to the ipap machine for the sleep apnea. all seemed fine until around 3 am when I was awaked by his loud breathing and thrashing around in the bed. he ripped the ipap mask off and he was obviously in distress. the nurses continued to come in every hour or so and I would ask what was going on they replied this was normal for him. at 6 am he became highly agitated and began to have even more violent tremors and he catapulted out of the bed to the floor where he seemed to be having seizures (HE HAD BEEN UNCONCIOUS ALL THE WHILE). the hospital staff was useless and they just kept giving him more and more IV drugs ativan and then haldol all awhile he became worse eventually he coded and they intubated him. he has been in a coma since. he came to with another violent episode after the initial 24 hours and went back into the coma. he has been in the ccu since the first episode and now I am told he had a history of being psychotic and the meds they gave him may have brought on the seizures. I dont understand any of the things that are happening and wondered if anyone here could shed some light on this. My friend is also a member here though I am not sure he had posted in along time. his name is Brian Markey from shrewsbury mass. Please if you are friends of his, know him or have any info that may help me understand this situation please email me either on the group or off list at brenzi@AOL.COM right now I am waiting word on weather they had enplugged the life support equipment or have a prognosis. thank you

Nina

Hello, I am new here and have jopined so I can help a friend with MSA by learning all I can to help him through this horific disease. He soon will be reaching a more advanced stage of MSA.

The reason I am replying to this post in particular is because I have first hand knowledge of spinal fusions myself and belong to an online support group where there atleast another 150 people that also had failed spinal fusions. If it would be helpful to you please do contact me and I will give you more info on fusions and other associated problems such as the domino effect which is the natural progression of instability of the vertabraes above and below a typical fusion.

Meantime

Good Luck to you anbd I do hope your pain is at an acceptable level today!

anemone

I posted this within my neuro update, but feel it's important enough to have it's own spot so this doesn't get lost. Nina

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There is something I wanted to share for my fellow hypermobile members or those with Ehlers Danlos III.

Teri was talking to one of the orthpedic surgeon's at her hospital about my spinal predicament. She told him about how my first graft failed, and 2nd graft was needed. Then she told him about how I found out I had EDS III aftwerward--at that point he said "OH no, she shouldn't have had a fusion... she's probably in the midst of a disaster now."

I think Teri was a little surprised, but then he went on to say that a person with EDS who has a fusion will then typically have a chain reaction of herniations because the joints are too loose to handle all the day to day stresses.He also said that I would be likely to not have problems much below T1 because the ribs help to absorb some of the stress and spread it out a bit more.

Live and learn I suppose. But I did want to share it with all of you so you wont have to learn the same lesson the hard way.

Nina

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I posted this within my neuro update, but feel it's important enough to have it's own spot so this doesn't get lost. Nina

=================

There is something I wanted to share for my fellow hypermobile members or those with Ehlers Danlos III.

Teri was talking to one of the orthpedic surgeon's at her hospital about my spinal predicament. She told him about how my first graft failed, and 2nd graft was needed. Then she told him about how I found out I had EDS III aftwerward--at that point he said "OH no, she shouldn't have had a fusion... she's probably in the midst of a disaster now."

I think Teri was a little surprised, but then he went on to say that a person with EDS who has a fusion will then typically have a chain reaction of herniations because the joints are too loose to handle all the day to day stresses.He also said that I would be likely to not have problems much below T1 because the ribs help to absorb some of the stress and spread it out a bit more.

Live and learn I suppose. But I did want to share it with all of you so you wont have to learn the same lesson the hard way.

Nina

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