jonchel

Thanks, everyone! I really appreciate your input. I think I need to have my Dr. investigate MCAD further in my case. Oh the joys of Dysautonomia! ;-)

Thanks, Joann..It always concerns me that our symptoms are so similar to the things that they tell you to get immediate help for. I don't believe I have anxiety and have also heard the theories on pooling. I just don't know. The thing I do know is how uncomfortable and frustrating it is. I have a pulse oximeter that always shows my blood oxygen level being at 100 or 99. Someone mentioned that it could be my beta blocker, but I've been on a 50 mg dose of metoprolol for over a year now. It baffles me.

Hi, everyone! I've been a member for a while but this is my first time posting. I am 40 years old and was diagnosed with POTS about 2 years ago after a long battle with doctors diagnosing me with panic/anxiety. My main symptoms prior to diagnosis was tachycardia, dizziness and intermittent chest pain. However, my symptoms have changed a little lately. I have been getting this feeling as though I can't get a deep enough breath - actually, it's really hard to describe and that's the best description I can give . I'm not panting or gasping for air, it's just a weird sensation. I also have some nausea and dizziness with it. All symptoms that I know can come with Dysautonomia or specifically, POTS. I had a heart catherization five months ago due to other symptoms (left arm discomfort and numbness) to rule out any coronary heart disease and my arteries were reported as being clear. Well, due to the fact that I am having the nausea now, I went to Urgent Care to be checked out yesterday and they did the normal EKG, Cardiac Enzyme markers and CBC and gave me fluids. The EKG of course showed a normal sinus rhythm, all my vitals were normal and blood work was normal. I have brought this breathing issue up to my Cardiologist who manages my POTS and he says it could be MCAD but didn't want to add new meds at that time since it is something that comes and goes. However, now it seems like it is always there. When I lay down, I feel fine but sitting up or standing, the symptoms kick in. I always get afraid that it's a heart attack on the horizon because these are they signs they tell you to look out for, specifically as a woman. Can anyone else relate?

For me all these are equal, on standing fatigue, body pain and and in a warm enviornment I can't control my body temperature and feel awful. I also have a lot of right abd/pelvic pain. I'm hyper though not hypo. I only get those hypo symptoms right as I'm having a presyncope event, which thankfully doesn't happen often, but will happen with heat, motion and/or exertion.

I suffer from that right abd/pelvic pain as well...As a matter of fact, I'm dealing with it right now. It started last Thursday and here we are over a week later, still suffering. All tests show nothing. Explanation is that it is IBS. Geeeezzzz, we are plagued with so many different things. :-(

I am CERTAINLY going to look into this! Thanks for posting this, Anna!