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I have had this symptom for around 10 years and it still scares me as if it was terminal digestive cancer because it keeps happening on and off but always after eating, specially greasy food, but not even always, which makes me crazy. I have it right now. It happens after 5 minutes eating and lasts around 30. 

I also have lots of digestive cancer symptoms, specially the squared or flat feces, which is totally scary because it is very typical colon or rectum cancer, but I don't dare to take the colonoscopy, I am too afraid and even if they said I have no cancer I will fear it. I also have chronic diarrhea, usually right after eating something greasy, huge hemorroids, malaise after eating, etc. It's been many years like this and doctors say that cancer is faster, but I know it is there. Everyone who developed cancer had the symptoms years before.

So... it is terrifying all of this. Has anybody ever known a doctor who knows the wrinkled hands reason which might make sense?

Same here, for many years, to me it happens after eating and lasts around one hour. It gets worse when I enter insomnia and muscle exahustion phases.

I went to LOTS of doctors, neurologists, internists, cardiologists... everyone and noone knew, they had never seen it. AMAZING.

I first learned of Mast Cell Activation Syndrome (MCAS) on this site. Following a high NE level on upright tilt at Cleveland Clinic I started to take more interest in reading about this topic. Thank you to all of you who have posted about Mast Cell Activation. One member even PM'd me with the contact information and several references for Dr. Lawrence Afrin in Charleston, S.C. A huge blessing!

I took this info back to my primary doc and after a few more months with little progress in my condition we decided to go see Dr. Afrin. Two 8.5 hour road trips and 28 vials of blood later I finally have some insight as to the cause/mechanism of my Dysautonomia. I have had a little bit of improvement with double dose H1 blockers and quad dose H2 blockers. Some of the best relief I've had from brain fog and fatigue thus far. Now I begin a long term process of trial and error with various meds and a more scientific approach to identifying potential triggers.

As a side note:

Out of about 40 possible symptoms Dr. Afrin asked me about on the first visit I had problems w all but 2 (I have good nails and no sinus problems.). When the blood work came back I had elevated

Prostaglandins, Norepinepherine and Neuron Specific Enolase. These results along with reported improvement from the antihistamines confirmed the diagnosis.

If you have multiple issues with most of your organ systems you might consider getting tested for MCAS. Thanks again to all my friends here at DINET. What a blessing you are to me!

Kelly,

Could you please post here the list of tests that Dr.Afrin told you to do? I am very interested because I will tell my doctor to prescribe the same ones for me, the same ones that Dr.Afrin prescribed you I mean. I am in Europe and can't even think of meeting Dr.Afrin.

Is it a long list?

Any detail will be much apreciated. Thank you.

Congratulations!

Please keep us informed. I am very interested too.

Best wishes and thank you for the information.