Welcome to Dinet, I am also brand new on here. I can relate to your frustruation with trying to get a diagnosis & help. What I have read on here is so true, about POTS being an invisible disease. It is so difficult & even many Drs don't really "get it". I have been ill, incapacitated & unable to work for the past 2 years & just got the diagnosis of POTS last month! I was first diagnosed with a rare kidney disease, Bartter's Syndrome, in the summer of 2009. Now, I am being told that the kidney disease is what "triggered" my POTs. It is a long, difficult road. I am glad to have found this site & am hopeful to learn more about dysautonomia in attempts to regain more quality of life.
New Here
in Dysautonomia Discussion
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Hi Ryan,
Welcome to Dinet, I am also brand new on here. I can relate to your frustruation with trying to get a diagnosis & help. What I have read on here is so true, about POTS being an invisible disease. It is so difficult & even many Drs don't really "get it". I have been ill, incapacitated & unable to work for the past 2 years & just got the diagnosis of POTS last month! I was first diagnosed with a rare kidney disease, Bartter's Syndrome, in the summer of 2009. Now, I am being told that the kidney disease is what "triggered" my POTs. It is a long, difficult road. I am glad to have found this site & am hopeful to learn more about dysautonomia in attempts to regain more quality of life.
Cassie